Retrospective Entry from 12 March

Hi all, quick update to let everyone know that Ellie was released from ICU today and we are back up on the ward - our home away from home. While the underlying problems in her lungs are still unknown (infection/inflammation?) she is doing well and even showing signs of progression. Her neutrophils have started to regenerate which is amazing and she hasn’t been febrile or nauseous for 3 days (likely due to steroids which will probably stop tomorrow) she’s much more communicative, lively and now becoming clingy to me and actually asking for emotional support. All good signs but we still need to work out what the cause of the ‘significant adverse event’ was. That’s the terminology being used to describe it as that info needs to be fed back to the MyeChild Trial.