The good news — and we need to remember that it’s very good news! — is that (on more-or-less the second anniversary of the big surgery) I just had my fifth follow-up CT-scan and there is no sign of any return of the cancer. Hooray![...]
Good afternoon, friends!
Karen just reminded me that I should let you all know that I had my six-month follow-up check-up at the end of June, and that there was no sign of any cancer. (I didn't send an update then, because they were concerned about elevated bilirubin levels — but it looks now as if these are due to a completely benign condition called Gilbert's Syndrome — so that's all right!) It'll be another 4½ years before they'll give me the "all clear," but for this particular cancer, the first year is by far the most likely time for any recurrence. So this is really good news![...]
I’m sorry not to have posted for so long. Tl;dr: Convalescing takes patience, but all is well.
I’ve been home for three weeks now, and I’m very very happy to be here with my family and kitties. Gradually over these weeks I’ve reduced the pain killers they had me take, and gradually I’ve been able to expand what foods I can eat (almost anything at this point, but I need to be careful to eat it slowly and to not eat too much).[...]
I’m sure I’ve said this before, but I’d like to repeat my thanks to each of you for your continuing encouragement and well wishes. This is dragging on longer than we had hoped, and it’s your cheers and whispers and messages and poetry that is keeping us going.[...]
Monday and Tuesday were pretty frustrating, feeling like nothing was changing, but then things started happening:
1. Erik’s nasogastric tube was removed yesterday afternoon, which has made him much more comfortable, as its presence was causing his most troubling pain. That leaves 6 tubes (3 incoming, 3 outgoing); 4 of which will come out before we get to go home.[...]
Sorry for the delay in posting an update--it’s been a weekend of ups and downs. In short, everything related to the actual surgery is hunky-dory, but all the general recovery stuff has been rough. There’s lots going on, but most of it isn’t really stuff I want to post about (endless details about bodily fluids, their measurement and proclivities, that sort of thing).[...]
Thursday was a pretty busy day, and Friday is continuing in that vein...
Yesterday started with some medical stuff: Erik’s naso-gastric tube was removed in the morning, which removed a substantial source of discomfort, though left a residual sore throat. Unfortunately, that also meant the end of the mouth swabs, so he’s having a hard time talking until he can drink water again. The tube feedings (started on Tuesday) had ramped up to the target rate, so they took him off IV feeding, and were therefore able to remove one of his IVs--an uncomfortable one near his wrist.[...]