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Erik Mueller-Harder - Journal

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Posted 2017-12-08T23:27:59Z

Thanks to you all

I’m sure I’ve said this before, but I’d like to repeat my thanks to each of you for your continuing encouragement and well wishes. This is dragging on longer than we had hoped, and it’s your cheers and whispers and messages and poetry that is keeping us going.[...]

Posted 2017-12-07T14:23:18Z

Finally some progress!

Monday and Tuesday were pretty frustrating, feeling like nothing was changing, but then things started happening:

1. Erik’s nasogastric tube was removed yesterday afternoon, which has made him much more comfortable, as its presence was causing his most troubling pain. That leaves 6 tubes (3 incoming, 3 outgoing); 4 of which will come out before we get to go home.[...]

Posted 2017-12-04T21:30:00Z

Bumps in the Road

Sorry for the delay in posting an update--it’s been a weekend of ups and downs. In short, everything related to the actual surgery is hunky-dory, but all the general recovery stuff has been rough. There’s lots going on, but most of it isn’t really stuff I want to post about (endless details about bodily fluids, their measurement and proclivities, that sort of thing).[...]

Posted 2017-12-01T18:01:30Z

tunes and tubes

Thursday was a pretty busy day, and Friday is continuing in that vein...

Yesterday started with some medical stuff: Erik’s naso-gastric tube was removed in the morning, which removed a substantial source of discomfort, though left a residual sore throat. Unfortunately, that also meant the end of the mouth swabs, so he’s having a hard time talking until he can drink water again. The tube feedings (started on Tuesday) had ramped up to the target rate, so they took him off IV feeding, and were therefore able to remove one of his IVs--an uncomfortable one near his wrist.[...]