Surgery
I really don’t expect to have much more news until after the surgery: a CAT scan and a PET scan have shown that the tumor is basically gone (or perhaps completely gone — they can’t say for certain until they’ve seen it in person), and that there’s no longer any sign of it in the nearest lymph node, either. That, coupled with my ability now to eat basically anything (so long as I don’t eat fast), some solid weight gain, and general good health mean I’ll be in good shape for the surgery when it comes.
The procedure itself is a fairly big deal: 7½ hours of robotic laparoscopic/thoracoscopic surgery; I’ll end up with twelve or thirteen incisions and — if all goes well — spend seven to ten days recovering in the hospital, with all kinds of drains, tubes, catheters, IVs, and epidurals poking out of me (or into me). I don’t think any of them will be removed until day №5....
Graphic details at Wikipedia, although do note that the mortality rates they give are old and don’t take the new laparo-/thoraco-scopic methods into account: they’re now ⅕ - ⅒ what they were just a few years ago.
The surgery is a good idea, as it more than doubles the five-year survival rate for those with esophageal cancer — significantly improving life expectancy even for those who were previously deemed cancer-free after chemo-assisted radiation therapy.
The surgeon is excellent, as I’ve mentioned; he’s done many hundreds of these surgeries (only about 2,000 are done each year in the U.S.), and has done more than 200 since he switched to doing them robotically a couple of years ago.
Once I can drink water without leaking, they’ll let me go home from the hospital. I’ll again be getting most of my nutrition through the j-tube until I can eat enough independently — essentially a week on liquids, a week on purées, a week on soft solids (that’ll be Christmas, probably), &c. Ultimately, I should again be able to eat almost anything, although I won’t really have much of a stomach left and so will need to eat six to eight meals each day. (And what Hobbit wouldn’t rejoice at that news‽) And I’ll need to sleep at a 30° angle. Other than that, life should start to get pretty normal come January, with full recovery expected by late February.
So over the next few weeks I’ll be preparing for the surgery, and madly trying to finish Mapping Mordor before my deadline slips very far away in the rear-view mirror. I may not post here again until after the surgery.
The surgery itself is scheduled for the day of 27 November (the Monday after Thanksgiving) at Dartmouth-Hitchcock Medical Center, and I hope to head home sometime the week of 4 December. Visitors are welcome! While I’m there, Karen will stay many nights with friends who live nearby, and Karen’s folks and Cameron (Clara) will keep the home fires burning in Cabot.
All-in-all it’s a little scary; but I’m healthy, I’m not obese, I don’t smoke, I don’t have diabetes, and I’m comparatively young — so the prognosis is very good.
’Til December,
— Ð

Comments (10)
sending lots of healthy/healing thoughts and good karma :] sounds like you'll be ready for spring training :} and [[[[[hugs]]]]]]
Best of luck with the surgery
Your strength in handling this is awesome Erik! Thanks for giving us all such a great example. And prayers will certainly begin on Thanksgiving for you, and everyone involved in this amazing treatment. Hopefully your Christmas present will be that it's nearly all over!! Much love, Sue
Best of luck, Erik! We'll be thinking of you and praying for you.
Dear Erik, I've been thinking of you so much as I know the time of your surgery is drawing near. As exciting as your Mordor plans are (and I imagine a great distraction too! :) ) don't exhaust yourself pushing to deadlines. You'll want to be as well rested as possible. I don't know if you have my email but it is: [email protected]. If Karen has a list of people to whom she will send updates about you sailing through the surgery with flying colors (positive visualization being something I believe in!) and other news while you are recuperating, I would love to be on it. I've been thinking of you while doing AMAHL. One of my fellow altos is an oncology social worker named Theresa (or Therese?) and there is a CVMC nurse named Betsy and I found myself wondering if you had met either of them. I'm so impressed with how amazingly positive you have been through this scary and I'm sure very painful/uncomfortable (euphemism??) Journey. Through your words I hear the voice of the lovely young man I knew so many years ago! Love to you and I hope to see youand to meet your family in the not too Distant future!
where are you performing amahl???? thanks :]
There were two sold-out performances in Montpelier. I'd have liked to have gone, but it was just too popular!
Becky, thank you so much for your kind note! I'll confess that as the time for the surgery approaches, it's become harder to remain quite so positive: there are moments — especially as bedtime approaches — that are much more difficult. It's particularly in those times that it's been so comforting and reassuring to think of the many friends — from near and from far, from today and from yesterday — who have sent such sweet messages. I feel well cared for, indeed. I don't believe that I've met Theresa or Betsy. I've been surprised through this process by how many people I've continued to meet at CVMC, considering how small it is! And of course the surgery will be down at Dartmouth-Hitchcock. I'm hoping I'll see some of the RNs who helped me at the end of August, for they were truly excellent. Karen will post here at PostHope after the surgery to let everyone know how it's gone.
I hope you're having a good t-giving, and please know we will be thinking of you and sending many good thoughts your way on Monday. You only need to be brave just a *little bit* longer, and then you will have kicked its a** for good. Thanks to the miracle of good drugs, hopefully this will go quicker than you think -- the waiting beforehand is possibly the most stressful part, but soon this ordeal will be just a memory (and a writing prompt). Many, many people will be with you in spirit on Monday, and the cats will keep your chair warm for you!
This post is now visible on my own blog at https://erikmh.org/post/2017/surgery/