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Journey to New Lungs

My husband Jed was diagnosed with Cystic Fibrosis at age 10, it is a terminal genetic lung disease. This February we have started a new chapter together, Jed is on the w[...] read more

LATEST JOURNAL ENTRY - 2018-08-06T18:02:36Z


Over the last 15 years of marriage we have experienced many different seasons and places we have called home. With Jed’s one-year post transplant celebration on the horizon it is causing us to reflect on this last season of life. Many months were spent focused on keeping Jed strong enough to wait for a transplant and preparing our family for whatever the outcome. After his transplant we shifted into being focused on Jed’s recovery process. Over the last 21 months, since we moved back to WI, we have experienced many highs and lows, but through it all we have had huge support. As we slowly move into what feels like a new season for our family I am overcome by the radical love we have received.

To You: 

Thank you to our family and friends who helped us move back to WI with very short notice so that Jed could start the process of getting on the transplant list at UW Hospital and Clinic in Madison, WI. It was comforting to know we were not alone as life was quickly changing with Jed’s decrease in health. God made a way for family to fly back with Jed and family came and packed us up and drove vehicles across country with the kids and me. Friends of family helped us load our belongings into storage as we moved in with my parents to prepare for the unknown.

Thank you to our parents who have never left our side, our gratitude is unmeasurable. They opened their home, time, resources, and more to be there for our kids when we were not able, to help care for Jed when I couldn’t, and listen along the way. They have been a source of encouragement to keep us focused on the ways God was at work in our circumstances.

Thank you to the medical staff at UW Hospital, we never felt like just another patient, but rather someone they listened to and cared about deeply. They cheered us on in the difficult times and rejoiced with us through the transplant and recovery. The hospital becomes your home away from home and the friendly faces of staff soon become friends.

Thank you to the multiple friends and family who have helped us build a new place to call home. We have decided to stay and settle into Plover, WI. We have been blessed with a school that has come around us and loved our children well, new friendships through kids sporting activities, and continued provision through work for both Jed and me. We purchased a new home, yet it needed some work to make it “double lung transplant” certified. With an overwhelming to-do list, it only became possible with the help of many friends and family members. A community of individuals painting, cleaning, fixing, mudding, installing, and moving have helped to make a house a home.

Thank you to everyone who has faithfully been praying, thank you! We know all the big and small miracles over the last two years are because people cared to take the time to pray for our family, specifically Jed’s healing. God gave us peace through it all. We knew God would never leave us or forsake us. He provided a community of people to pray for us from around the globe. Also, in the season of waiting God sent family and friends at just the right time to visit. We know many of you were willing to visit, yet, Jed’s health didn’t allow it at the time. Thank you for loving us so well.

Thank YOU for praying for us, supporting us, crying for us, visiting us, helping us, and rejoicing with us. We have learned over the years that God created us with the need to depend on each other. Pride makes us want to do things alone, yet beauty comes in community.

“Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.” – 2 Corinthians 1:3-4

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