September 20, 2016
At times it is easy to forget he is sick. You have what appears to be a perfect son, at home and doing all the things babies do: eat, poop, sleep and repeat. He already is getting bigger than when he was born. It is hard to think about what it will be like to go back to the hospital for his surgery. For now we appreciate every moment, as it is a gift to have him at home.
It is hard at times, waking up at all hours of the night to his cries, but it is totally worth it. I am starting to get in to some kind of routine and adjust to parenthood. Mostly we spend a lot of time taking care of each other and relaxing at home.

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