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Posted 2016-11-23T03:17:41Z

November 22, 2016

All of my defeat from yesterday melted away when Louis' team decided, after some tests and tweaks to his medications, to remove his breathing tube. Dan and I heard our sweet baby boy cry for the first time in two weeks!

I can feel my heart growing every moment Louis improves. We even got to hold him. It's been 15 days since I have held my baby in my arms. Yesterday, my tears were from anxiety and fear, and today they are from joy and love and gratitude. 

These nurses and doctors, all of Louis' team, are with us through our darkest moments. They share our grief, and fear, as well as our joy through simple moments, and our great big love for our baby. I can't say enough kind things about them. They are extensions of our family.

Someone put us on the list for the therapy dogs to visit us. If you aren't familiar, therapy dogs are trained to be very well behaved and their job is to visit patients to be a bright spot in the children's day. Sometimes these kids are in the hospital for extended periods of time so a surprise visit from a well behaved pup is fantastic. Our favorite dog stopped by today. He's a Great Dane and bull mastiff mix and his name is Pavlov and Louis wants one! 

This rollercoaster of emotions is making these bright spots shine so brightly. Louis is still climbing a tall mountain but he is making great strides. 

My sweet baby Louis! You're doing it! 

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Comments (11)

  • Kara Hoffman
    Kara Hoffman

    😍💚💚💚 love reading this! You've been in the valley so long, I'm just so thankful you've gotten a boost! Hugs to you all

    9 years ago · Reply
  • Kara Hoffman
    Kara Hoffman

    Also- not sure how it's possible, but Louis really looks like Dan from the side! Who knew a profile could bear such resemblance! Fun to see those pics of all of you

    9 years ago · Reply
  • Crystal Meyer
    Crystal Meyer

    <3 I am so happy to see such a great report! <3 <3

    9 years ago · Reply
  • Kathi  Moore
    Kathi Moore

    You're doing it Louis!

    9 years ago · Reply
  • debbie jo shorland
    debbie jo shorland

    That moment...holding your breath...and then...the cry that makes everything right with the world. On the dog note. That could be Louis' pony :)

    9 years ago · Reply
  • debbie jo shorland
    debbie jo shorland

    Scott and I completely understand that cry

    9 years ago · Reply
  • Andrea Gartner
    Andrea Gartner

    This is good news to hear. Tomorrow is Thanksgiving - it puts things into perspective as to what "thankful" truly means. Louis is such a strong little guy - as are his parents. Continued thoughts and prayers are with all of you.

    9 years ago · Reply
  • Martha Ribbens
    Martha Ribbens

    Whew! I actually just exhaled a sigh of relief. I didn't even know I had been holding my breath for days. I can barely see to write this from the tears running down my cheeks. What a brave little fighter Louis is...all of you are. Tell Louis that grandma & grandpa will buy that little puppy as soon as he is ready. Thank you God for Louis and his beautiful parents. We never knew how incomplete our lives were without him. He is such a blessing and a true gift. He has stretched and filled our hearts with more love than we thought possible. Rest up little one, there will be lots of puppy play very soon.

    9 years ago · Reply
  • ASHLEY GRIFFITHS
    ASHLEY GRIFFITHS

    Aw YAAAAA!!! :)

    9 years ago · Reply
  • Susan Kimbel
    Susan Kimbel

    Wonderful news! Louis is pulling through. So much to be thankful for!

    9 years ago · Reply
  • Sara Andrieux
    Sara Andrieux

    We love you and this sounds like a great thing to be thankful for. Happy Thanksgiving! 😙

    9 years ago · Reply