Back in Minnesota, transplant day is July 25th!

We arrived in Minneapolis last week and are getting settled in for a long 4 months....

The first week is appointments and work up for Lyla's transplant which is schedule for July 25th.  So far everything is going well and the doctors are very happy with how Lyla is doing.  Her heart has actually gotten better since they saw her in early May and is a good sign that her 9 doses of Enzyme infusions are working and the two blood transfusions thus far are helping with her hemoglobin levels.  Lyla's schedule as of now is:

Wed July 13th - admitted to hospital and operation on Thursday for Hickman IV line placement, Brain MRI, and Lumbar puncture

Sunday Jul 17th - Starts 8 days of high dosage chemotherapy.  The chemo will kill her immune system and allow the new cells to grow in her body.

Monday July 25th - TRANSPLANT DAY!!!  The donated cord blood (stem cells) found through Be The Match and is a PERFECT 6 out of 6 match will be sent via courier, thawed and immediately put into Lyla's body through IV. 

+30 days after transplant - A waiting game while the new cells find their way to Lyla's bone marrow and start to grow and reproduce in her body.  This is the most critical and challenging time of the process. We are expecting a lot of ups and downs during the first month. Luckily the success rate is 85% and Lyla is going into transplant with best case scenario with  a perfect cord blood match. 

We will start posting pretty frequently and give more details along the way!  Thanks in advance for all your love and support!

Helen, Steve, and Lyla