Surgery Soon
Lyla is going into surgery in a few hours. In the grand scheme of things, this is pretty minor but always scary having a little one go under Anesthesia and for so long. She will be under for at least 3 hours. She's having her port taken out and getting a Hickman line placed (a double IV line on her chest so chemo and other drugs can be given at the same time). She's also getting a Brain MRI (they have to sedate babies for that because it takes so long and they need to hold still). She's going to have a Lumbar Puncture to test her spinal fluid. And, finally her eyes and nerves around them are going to be tested further (trying to do tests on a squirmy baby did not work very well yesterday!). Her hemoglobin levels are a little low again so she's receiving a small blood transfusion here shortly. The worst part about the operation is the 6 hours beforehand that Lyla can't eat or drink. I finally managed to sing her to sleep (in my horrible singing voice) so she's getting in a good nap beforehand! We will let you know when she's out!
Comments (13)
Prayers for a successful day!! Love to you all! Ashlee
Sending lots of love! Xxc
Praying for all three of you today.
Sending lots of love and thinking of all of your today! xoxo.
My thoughts and prayers are with your family.
Sending lots of prayers and love for you all today!
What a hard day for you and Stephen and little Lyla to have to go through. I have been thinking of you all day and was so pleased when Laura-Jane sent me some pictures and a darling video of Lyla with her 'lines' in place. Just wonderful to see how cheerful she seems. I'm always so amazed at how resilient children are. All our love goes out to Lyla and you both. We are very much with you all even though so far away. Thank you for the updates. Much love Christine xxxxx
Sending prayers for sweet Lyla and all of you. Such a strong girl and parents!!
Take care of each other and stay strong. My thoughts and prayers are with you all. Lyla remains strong, happy and cheerful, so take a lead from her. All my love, Nan. XxxX
We are always thinking of you guys and as always, sending our love. Love and kisses to the gorgeous Lyla from us all xxxxxxxxxxxxx
Oh my, pre-surgery deprivation for little Lyla - that must have been so hard for you guys! My thoughts and prayers are with you - hope everything goes smoothly... Aunt Susan
BIG LOVE to all ❤️ Trusting God in everything 🙏
Helen, you and Steve are so strong, Lyla is so lucky to have you. And I am sure she loves your singing voice, were you singing her the new JT song ? :)