Day +13 - Roller coaster ride

Lyla's had a few days of riding a roller coaster but we think it's slowing down. There were some pretty rough hours of pain and issues with mucositis (chemo sores inside body). Without sharing too much detail, the sores in her mouth opened up and she didn't have enough platelets to clot them so it was a little horrific, especially for a dad who doesn't like blood. The sores also cause inflammation in airways so she's had a little bit of breathing problems. This is under control now with more frequent platelet transfusions and oxygen flow in her crib. Her morphine drip was increased everyday last week but it's held steady the last day with only small bumps in other pain meds so that's a pretty good sign. She's had no infections or major complications which we are so happy about and the doctors continue to be impressed with her progress. She's really doing better than expected but any pain as a parent is of course heart breaking. She has had some hours of normal happy Lyla too which is also so good! The best news though is Lyla's cells are growing!!!! They have been slowly increasing everyday!! As such, we are all pretty confident Lyla has hit the worst of it and will merrily float down "it's a small world" ride soon!! Grow Cells, Grow!!!!