Day +18 - LYLA IS OUT OF THE HOSPITAL!!!!
Lyla is out of the hopsital!!!!!!!
We never thought this day would come and certainly didn't think it would come this early!!
We left early evening and she's doing great so far! It's so nice being a family together again out of the hopsital! And it was such a crazy and wierd feeling holding and letting Lyla crawl around without a bunch of cords attached!! Oh how you miss the simple things after being in the hospital for exactly one month!
The cords unfortunately didn't last long because we still have to give her IV nutrition 16 hours through the night/morning but it's not nearly as bad as in the hospital. Steve and I also managed to give her nightly dose of 10 medications! It's very scary that everything is in our hands now...fingers crossed 😁 It's been the most tiring day ever so we will write more soon! ❤️💖💗
Comments (15)
She couldn't be in better hands! So happy to hear things are going well!
Congratulations!!! This is amazing news!!
Amazing news !!! Love to you all 😘
Wow - she is an amazing kid! And so lucky to have such great parents... Thinking of you every day. Love you! Aunt Susan
I am thankful
You two must be overwhelmed with the feeling of responsibility. And also with joy at the freedom Lyla has now. Her smile is the most amazing thing, she just exudes happiness...she is so beautiful!!
That is wonderful. You and Steve are amazing Lyla is on vey safe hands xx
So amazing!! Keep up the great work Edgington family. Get some good rest.
wow! Good luck, Mom and Dad! May the fairies of good parenting be flying around and helping you constantly! I hope all goes well and take turns sleeping!!! xoxox
Looking at Lyla you just want to smile, somehow she just excudes happiness. I can't recal a more infectious smile. It was so lovely to see you all last night so joyous and happy leaving her sterile bubble to begin the next stage in her recovery at the McDonalds house sooner than any other transplant patient! It proves what an incredible remarkable little girl you have been blessed with. Take Care . Xxx XXX xxX
Just the most brilliant news to wake up to this morning. So happy for you all and wonderful to see that Lyla smile again. Thinking of you all the time. Much love Christine xxxxx
Wow! Excellent news. Beautiful smile. Amazing girl.
Hello little warrior! Keep growing your cells every day to keep you strong! Your smiles are giving great relief to your Mommy and Daddy and the world is watching too! Love Auntie Anne
This is such wonderful news! We are so so happy that Lyla is out of the hospital!!! Our prayers are being answered! We love you little Lyla! 💗
Wonderful news!!!