November 22, 2014

My apologies for not posting another update sooner.  Life has been crazy since Meghan was admitted on October 15th to begin the process for her Bone Marrow Transplant.  After the transplant on October 21st, Meghan had some very tough weeks, which were unfortunately expected.  She developed mucuscitis (mouth sores) in her throat and down her esophogus about a week post transplant.  It was very painful and she was on continuous pain meds and a pain pump.  A few days after the transplant she developed an infection in her Hickman line and they had to remove it and put a new PIC line in her right arm.  Then recently she developed a blog clot in the vein that the PIC line was in so they had to remove that line and put in another PIC in her left arm.  Because of the clot Meghan has to have shots twice a day for about another month.  Her poor legs are so bruised and sore from all the shots.  The GREAT news is that Meghan was released from the hospital this past Tuesday!!!!  We have settled into our temporary apartment in Canton at the St. Casimire House, just minutes from the hospital.  We will be here till mid to late January.  Meghan is feeling so much better now that she is out of the hospital.  We are trying to get her into a regular sleep routine again.  She has follow-up clinic appointments 3 times a week right now.  She is still not eating and has lost a lot of weight.  But this is all part of the process.  She tries but nothing tastes good yet.  It will just take some time.

Going forward our biggest challenge will be to keep Meghan from developing an colds and fevers, of which she is highly susceptible.  She is allowed to have visitors, but the visitor has to not have ad a flu mist within two weeks, have not had a cold or fever for two week, or have traveled outside of the US in the last month.  She is still unable to be around any live plants and flowers.  So our Christmas tree this year will be artificial.

Tim is doing great.  Two weeks post Harvest he was able to play in his final Football game of the season.  He really enjoyed all the attention he got from being a donor.  :) 

Thank you all for all the wonderful support you have provided over the last few months.  I don't know how we could have done it without you.  We pray that this will all be a distant memory soon and Meghan will be able to enjoy her high school years to the fullest.

Michele