January 15, 2015

Happy New Year!  Wow, what a crazy last couple months for us.  Lots of good news and progress for Meghan.  Thanksgiving was spent at the apartment and a wonderful co-worker of mine prepared a fabulous Thanksgiving Dinner for us.  The following weeks were fairly quiet with just follow up appointments at the clinic.  But during this time Meghan still struggled to eat and lost a lot more weight.  Just before Christmas Meghan finally agreed to have an NG tube put in so that she could finally get some much needed nutrition.  The tube was in for 2 weeks and during that time she began to feel much better and had more energy.  Now she is eating regular food and she is not losing any more weight.  The weekend before Christmas, thanks to another fabulous co-worker, we stayed at the Waterfront Marriott in Baltimore for 2 nights.  It was Terry, myself, Meghan, Tim and Meghan and Tim each had a friend join us.  We had so much fun just hanging out and playing games.  Meghan hadn't smiled and laughed so much in a long time.  For Christmas the doctors gave us permission to take her home on Christmas Eve and Christmas day.  That was the best present we could have gotten.  New Years Eve was spent at the apartment and we were able to watch the fireworks from the roof top deck, though Meghan went to bed before that because she wasn't feeling well.  New Years day we were able to go home for the day and Terry's family came down for a quick visit.  January 9th marked day 80 post transplant and the doctors finally agreed to let Meghan go home because she is doing so well!!  With the stipulation that until she gets to day 100 post transplant and there are no problems, we keep the apartment and when bad weather is expected we go stay there to be close to the hospital.  That being said, Meghan came home on Friday and the Sunday night had to go back to the apartment because we were going to get ice the next day.  Meghan's clinic appointments are now 1 day a week and she is going to physical therapy one day a week.  Her meds have decreased a lot and she is down to just 2 pills twice a day during the week and 3 on the weekends.  She is also still getting shots twice a day for the blood clot, but has a sonogram scheduled early February and we are hoping they will let us stop the shots. FINGERS CROSSED!!!  Schooling was a struggle while in the city but overall Meghan did very well.  She is really looking forward to having her home school teacher she had before at home and getting back into a regular routine.

I'll post pictures soon.

Happy New Year and God Bless.

Michele