What’s up?
3/23/22
So there goes my dignity again. I asked to 17year old daughter to help me in the shower before shewent off before she went off to school.how do you casually ask your daughter to Help you adjust your boob so it appropriately falls into your sports bra?You swallow your pride and git errr!done,frequently Bryant has early morning appointments. It’s been several weeks since I got out of rehab. Now my days are filled with inhome health care!! 3 times a week including once a week buddy call to answer questions about my Optune device, which has been going well; lab work, weekly neurologist visits, there sure seems to be a shortage of phlebotomists in this town, as my arms show proof of this. Most of the MRI are with contrasting dyes and without dyes. An I’ve port needs to be put in before somehow I have avoided getting a permanent port in my jugular vein Today, my bruises on my arm are about 4 weeks old!
I will try to be more consistent on writing as it is of a great help to me In examining my thoughts an feelings.
March 1
I’ve been feeling more weak,this week. My left foot is dragging I feel and most probably look like Quasimodo limping around and slurring my words, finally, I got a little more worse with disorienting speech ultimately feeling my husband called the neurologist who quickly put me on steroids again, moved up my next mri by a week. So, I’ve avoided another seizure, by staying on top of things again. I guess i I can’t say falling down 3 times over the weekend wasn’t a big enough clue for me. Everyone else seemed to catch on pretty quicklyWhen things begin toto go awry. It is becoming harder and Harder to type so I have been dictating, which we all know how accurate it is?!
Picture three shows more and more bruises they come and go and stay for weeks and weeks at a time.Picture number one on the left side of my latest MRI look
3/23/22
So there goes my dignity again. I asked to 17year old daughter to help me in the shower before shewent off before she went off to school.how do you casually ask your daughter to Help you adjust your boob so it appropriately falls into your sports bra?You swallow your pride and git errr!done,frequently Bryant has early morning appointments. It’s been several weeks since I got out of rehab. Now my days are filled with inhome health care!! 3 times a week including once a week buddy call to answer questions about my Optune device, which has been going well; lab work, weekly neurologist visits, there sure seems to be a shortage of phlebotomists in this town, as my arms show proof of this. Most of the MRI are with contrasting dyes and without dyes. An I’ve port needs to be put in before somehow I have avoided getting a permanent port in my jugular vein Today, my bruises on my arm are about 4 weeks old!
I will try to be more consistent on writing as it is of a great help to me In examining my thoughts an feelings.
March 1
I’ve been feeling more weak,this week. My left foot is dragging I feel and most probably look like Quasimodo limping around and slurring my words, finally, I got a little more worse with disorienting speech ultimately feeling my husband called the neurologist who quickly put me on steroids again, moved up my next mri by a week. So, I’ve avoided another seizure, by staying on top of things again. I guess i I can’t say falling down 3 times over the weekend wasn’t a big enough clue for me. Everyone else seemed to catch on pretty quicklyWhen things begin togo awry. It is becoming harder and Harder to type so I have been dictating, which we all know how acctythatis1st pix looks scary the illuminated masses. Better to use the sunset picture numbertwo. The third picture shows my many bruises they come and go and stay for weeks and weeks.

Comments (6)
I love you Sue you are the strongest women I know. Keep your head up, be thinking of you.
❤
❤️🌻❤️🌻❤️🌻 my dear friend
Sue, Talen, Zip, and I, have you in our thoughts and prayers. Please let me know, or Deanna know if there is anything at all we can do to help you. You are a strong woman and a lm avid fighter. Sending you tons of love and support. -Carly and the boys ❤️
Keeping you in my thoughts and prayers and will check in with you next week. Stay strong~ Mary Beth
i'm not sure if I do this right as I wrote you yesterday but!!! I mentioned that my port has been in for 5 or more years and so much easier that a vein in the arm. It is located above by right breast and into an artery. Painless, so go for it. Don't worry about typing errors - who cares. I hope this gets to you. Diane K.