A Super Update for Super Brock

Super Brock is doing fantastically! The last couple of weeks it has become more apparent that the medication levels in his bloodstream have lessened and he is awake more often. He smiles. He coos. He absolutely melts my heart in a way that I cannot ever describe. Being told in the hospital never to expect these things have made them so much more meaningful to me. I don’t take them for granted. While these things don’t mean he is necessarily healed and won’t have challenges ahead, I will celebrate them now for exactly what they are to me. A miracle. God continues to work in big ways through all of this- in the things Brock has done since leaving the hospital, in the people that we have met, through the prayers of you all. For that, I am so thankful.

We were finally able to get therapy evaluations completed- so Brock now has a speech, OT, and PT therapist following him- along with his neurologist, neurosurgeon, and urologist. Add pediatrician visits, chiropractic care, lymphatic massage therapy, and anything else we can get our hands on…and it makes quite a juggling act that we are slowly getting better at balancing. The problem is when one ball drops, they all come crashing down and it takes several days to get it all back where it should be.

We have had our first accidental skip of meds…which was not followed by a seizure, thank goodness! It is still incredibly nerve racking to think of getting out of our routine, but hopefully that will come soon too! The weather has been wonderful, and we all have enjoyed spending lots of time outside in our backyard. Cold and flu season will be over soon and we are looking forward to getting out and about much more often!