Day 23

Still in the hospital! Well, we thought we might be going home today but, not so much. As I mentioned before, Sofia's ANC number has to be 500 to go home. On Thursday her number was 410 so everyone thought Friday was our day. Today when we woke up we got the news that it dropped to 170! I was bummed but more nervous that something was going wrong. The doctors have assured us that this is what happens in this first phase of treatment. Numbers go up and go down and go up again. The good news is that Sofia is still doing well. No fevers, and stable vitals. So we continue on in our home away from home. Sofia is still having her moments of steroid rage and sadness but for the most part her spirits are up! She hates sitting in our room so she looks for any excuse to take a walk through the halls. Yesterday grandma brought her some Christmas hats so we now dress up and walk around singing jingle bells, which all the nurses love!! Though it might be getting old for them, as she wants to do it about every hour. 😊 As you can see in the picture of her sleeping, she's starting to get a little "moon face" from the steroids and the non stop eating. Pizza is still her first choice with Rosemary panzanella crackers as her all day snack. It's crazy to see my daughter who barely ate one meal a day last month, eating all day and all night. Yesterday she had her 4th dose of vincristine chemo so she's been a little sleepier than normal, but didn't complain about tummy aches as much as she has with the previous doses. So now we hope and pray that she continues to feel good and her numbers start climbing again. No matter what, she goes in for her bone marrow aspirate on Thursday and we find out if the leukemia cells have been killed. It will be a stressful week but we will keep smiling and smothering her with love! Thank you to all of Sofia's army for the constant prayers and love! We are so blessed to surrounded so much love!