One Step Back

Yesterday, we received a call from Sofia's Doctor, asking if Mike and I could go up and meet with him. My stomach dropped and of course I needed to know why. He told me that in addition to the standard mrd test that came back last Friday as undetectable, he runs secondary tests to make sure the results are all the same. Unfortunately these tests came back detectable. Because of this, Sofia is being moved into a High risk treatment plan. I was in shock and so sad. Of course my thought is, the medicine isn't working. Here is the frustrating part. In order to be considered undetectable, standard risk, her MRD has to under 0.020%. Her MRD came back at 0.021%. So she is so borderline but because of that fraction they want to treat her more aggressively just to be sure. She is still in "remission" as 99.079% of the cancer is gone but she is now high risk. We received our new chemo schedule and though the length of time is similar, the amount of chemo she gets is about 4x more than she was going to get in standard risk. She will also be hospitalized 4 times during the next phase to receive very high dose chemo. I'm giving us today to feel sad and angry. Tomorrow we start our consolidation phase, and she will get 4 chemo's over 6 hours, so we need to be positive and strong for her. Sofia has been feeling great the past week and is back to her constant smiling and laughing. We had a really special morning that I will post about tonight. We pray that all of the new chemo gives little to no side effects and that her counts don't drop too low.