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Posted 2015-12-27T08:16:49Z

Christmas time

It has been a busy but (luckily) uneventful week. After Sofia's long Monday we weren't sure what to expect. We decided to keep her on a constant dose of Zofran so she didn't get nauseous. Tuesday morning we started with our meds and than it was play time! As far as her mood, she was great. She was her normal 3 year old self. Laughing, playing and the occasional foot stomping when mommy and daddy say no. Her appetite is gone! It's crazy how different things are being off steroids. She went from eating around the clock to a couple of bites at meal time. Her steroid cheeks and belly have also gone way down. Tuesday, Mid day I put on my mommy Nurse gear and administered her chemo into the line attached to her port. I really played up the nurse thing which made it kinda fun. I was crazy nervous but it went well. Still can't believe they have us do these things at home. Wednesday was a lot of the same with the addition of a long nap! Sofia was running around chasing me and stopped quick, looked at me and said, I want to lay down. She was asleep in minutes and was out for hours. She woke up smiling ear to ear. The doctors and nurses always say that kids handle all of this so much better than adults. They feel good until the don't and the minute they feel better they are up and playing again. Christmas Eve was an early morning as we headed to the hospital for labs. After 2 hours of waiting, the labs came back and everything looked great. Her ANC was 5600, which is the same as any other health kid. We know that the chemo she started last Monday will drop her counts about 7-10 days after starting (so this coming week) but with that high number we could rest a bit easy on Christmas Day. Christmas was great! Sofia was so excited to see if Santa really came. And after three months of asking, she finally got her bow and arrow! Though, the easy roller has easily been her favorite gift. She's been riding all around the house non stop. As Mike and I would get stressed about the normal holiday stuff, I Had to stop and say, none of it matters! Sure, I would love to shop the sales, to go to my favorite midnight mass and for the house to clean, but truthfully right now I don't care about any of it. We were all home, together and feeling good, and that's all that matters. So our prayers were answered this past week, as Sofia had no real problems with her chemo. We start the process over again on Monday, so we pray for another good week!! And let's not forget about my baby boy! Happy to report that my little angel has been sleeping a 7-8 hour stretch at night! God knew what he was doing when he sent me that baby!! Hope you all had a great Christmas! Love to you all...

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Comments (3)

  • Mike Koblis
    Mike Koblis

    Hi Gina, what a terrific update filled with so many positives and up beat events. It's great to hear that Sofia and her family had such a wonderful Christmas. Our prayers for Sofia and for you all continue as strong and as steady as always please keep the updates coming and I hope they are all fill with good news like this one was. Happy New Year!

    10 years ago · Reply
  • Colleen Koblis
    Colleen Koblis

    Thanks for the wonderful update! Sounds like Christmas was pretty fun and uneventful! Glad to hear that Nurse Gina has the Chemo regiment down pat! Still keeping you all in our prayers!

    10 years ago · Reply
  • Joanna Ramos
    Joanna Ramos

    Gina- So wonderful to learn that Sofia is doing so well and that you were able to be home for Christmas from the blog description. Prayers were said at services for your entire family and that Sofia be surrounded by healing energy. You are amazing! XO Jo Jo and family

    10 years ago · Reply