Delayed Intensification Day 1
We had such a great week and weekend!! We didn't quite know how high or low Sofia's numbers were so we stayed home most days and swam! She is officially crazy about getting in that pool! We attempted the beach on Friday morning but it was freezing so we came home to the hot backyard.
On Monday morning we went in for labs and her numbers were great!! All numbers were up and her ANC was 2300. We were a go to start delayed intensification today.
We have been nervous about today because the phase is supposed to be very hard, last time Sofia got an LP she threw up for 4 hours and we are getting another bone marrow 1 in a million test to see if any cancer cells show up. We mapped out a plan with our doctors and nurses to try and minimize the throwing up and for the rest we just need to stay positive and take it hour by hour.
We arrived at 8:15 this morning to get some pre-hydration and than Sofia was taken in for procedure. She got an LP with 3 chemos in her spine and a bone marrow aspirate. She was a little upset when she woke up so I held her in my arms and she went back to sleep. She then received two more chemos in her port, one on which (the one they call red devil!) was a new drug for us. Sofia slept through all of it and woke up after 2 hours feeling great!! She asked for rice crispies and a cookie. We went over the plan for starting steroids tonight and went home. As soon as she got home she was playing and dancing like it was just any old Tuesday. She of course could not wait to see her brother!
For dinner she requested a nectarine, a peach and some Rosemary crackers. I can only imagine what she will be requesting when the steroid hunger kicks in! We just gave our first dose of Zantac and steroids which she hated. She will take these twice a day for 7 days, get 7 days off and than again for another 7 days. This in addition to another chemo this Friday and the next 3 Tuesday's.
We know she will not feel great many days over the next 58 days, but today she feels good and that's all that matters.
Thank you all for your prayers, love and support. Go #teamsofia
Comments (6)
Wow! Sofia is an incredible child, and you guys are an unbelievable family. Sofia is the first one in my prayers every morning + evening (you guys are too). All of your strength truly amazes me. May this (difficult) treatment period go as smoothly as is possible. Being "Sofia Strong" sure is my motto.
This baby girl is amazing! Massive prayers for next phase and go #teamsofia for sure!! Love y'all.
She is so strong!! We have her in our prayers with my girls!!!
Sending prayers that the next 58 days go as well as today. Hugs and kisses to Sofia, the best big sister ever! Prayers for continued strength for you and Mike. Always in our prayers.
Dear Gina, just to let you know that your updates arrive also here in Switzerland at the headquarters of the World Baseball Softball Confederation! We are all happy to here the good news. Sofia is a strong girl and we are all with her. We keep supporting and praying for her and your family. Go #teamsofia Francesca & the WBSC team
It's good to hear that Sofia's numbers were up enough to to start this next round of Chemo. We will be praying for a great out come and as little discomfort for Sofia as possible. I hope haveing the swimming pool to go in will help Sofia recover better form any side affects. She is always in or prayers and will continue to be so. Thanks Gina for the update.