Last day of DI

Day 50, the last day of Delayed Intensification!
It's hard to believe that we reached the end but the past 60 days (how long it took with delays) seemed like forever.
This week was good but we have been dealing with cytarabine side effects all week. Sofia needed a blood transfusion on Wednesday, she's had zero appetite and dropping counts. We were hopeful that labs today would show her counts coming up, but she's at zero. 👎🏼 So even though the chemo is done for this round we can't move forward until her ANC recovers back to 750. We will get labs again on Tuesday and see how it's progressing.
Sofia is still excited about meeting Buster Posey but always has to talk about Hunter Pence in the same sentence.
So, now we need to start thinking about maintenance which I guess means "living" a bit more. Since diagnosis, so much has been out of our control. The only thing I could control was her surroundings and keeping her space as clean as possible. We made it trough the whole winter with no colds in this house! Naturally, the idea of letting her go to school (guaranteed cold) or walk into a mall scares me to death. Today the nurse told me that sometimes maintenance is hard emotionally for the parents because you get a bit of breathing room and the emotions you haven't been able to focus on, start to kick in. PTSD is very common for parents of sick children. It's good to know so we can deal it as it comes. Though I know re-entry to life will be good for all of us, it sure is a strange feeling. I might need an anti-anxiety on her first day of school!!
The one thing I know for sure is that my children are the strongest, cutest and most loving people, ever! We are so incredibly blessed to be able to wake up every day to those adorable faces!!!
This was a scary phase but we made it through surrounded by all of your love and prayers, and we thank you! If you're going out this weekend, have a glass of champagne for me and cheers to the end of DI!