Starting Preschool

So much to write!
It has been almost two weeks since we've started maintenance, and I feel like we've gone a bit crazy!! First off, Sofia did great on her first pulse of steroids. She never got angry like in the past, just a little clingy starting about the 4th day. But, much better than I was anticipating. Her craving was not pizza or pizza rolls ( which she told me she will never eat again) but Parmesan flats. These gourmet croutons were eaten all day for 6 days straight! My mom was delivering 6 bags at a time. After our last delivery she decided she was done. I can only imagine what cravings we are going to see in the next year and a half!
With steroids over we decided to focus on our pill taking. Remember, Sofia takes one pill every evening and 6 pills on Wednesdays. For the first week she refused to swallow the pill and ended up chewing it. Pieces were stuck in her teeth and I was worried she wasn't getting it all so I bought this pill taking cup on Amazon and we set out on our mission. This oraflow cup is great and you really can't tell your taking a pill but Sofia would stick her tongue in the spout which would wet the pill and it would get stuck. Basically, it wasn't working. After many tears, a couple freak outs and a long talk about how big the hole leading her throat is, she just said ok mom, I'll do it now. I put the mini m&m on her tongue got her sport top water bottle and she swallowed it. We got the pill and down it went. She now loves taking her pills and can do all 6 in a row, no problem! The mind is a powerful thing!!
So, with her week of steroids over last Sunday and pills down, we made the call to start preschool on this past Tuesday. I was nervous and she was nervous, but so excited. Of course on Monday night she woke up screaming with joint pain and was up for hours. I told her in the morning that maybe she should stay home and rest but she said I'm going to school! Mike, Noni and I dropped her off and than went to breakfast waiting for pick up. My aunt is her teacher and we thought maybe she should only stay for 2 hours that first day. We went to get her and she was doing great so we left her there until pick up. She had so much fun!! She got in the car and told us everything in detail. She said "mom, my teacher was talking about God and Jesus, so I told her that you have a brother named Anthony who lives in heaven with them." I knew than that there was extra angels watching over her when I couldn't be there. When we got home we were surprised to see that while we were gone our first 2 butterflies had hatched! And because the day wasn't already emotional enough, I looked up and thanked my dad and brother for the sign. I guess after me kindly yelling at them in my prayers every night for 10 months, they knew it was their time to give me a little signal that they're with her.
At this point, I'm emotionally drained and have a horrible headache so I say what the hell, let's go out for dinner. I know, I went from living in a bubble to germ overload in like 60 seconds! Sofia was over the moon happy. She loves going to restaurants!! Mike and I made it a point to start taking her out to restaurants from birth so that she would learn to behave and it worked, she's great in restaurants. Now, Noni hasn't been to a restaurant since her sisters birthday and at that time he was only 7 days old. He not as quiet or calm at 11 months. It was a great day!
The week of fun was just getting started! I can't wait to share about what we did this weekend. But it's past midnight and I'm exhausted, so Stay tuned tomorrow for part 2.
Thank you #teamsofia for all your prayers!