Day 475!

I can't believe it's day 475!
Today Sofia went it for another Lumbar Puncture with chemo. Though I absolutely hate LP's, we have found comfort in having a routine on these days. Given Sofia's extreme sickness after her Lumbar Puncture in December we have started taking every pre and post step possible. It worked well last month so we crossed our fingers this month and did an exact copy of last month. Happy to report that Sofia did great and had a really good day post treatment! We even went out for ice cream and dinner (she gets the ice cream first because she can't eat dairy near her evening chemotherapy). Her ANC is lower than it's been in months, at only 590. All of her other numbers look good so we just need to be cautious and check again in a couple of weeks.
After our ER scare a couple of weeks ago, we've had a pretty quiet month. The rain kept us home, even more than normal. We tried to take advantage of every sunny moment outside! Sofia was also lucky enough to be invited to Disney of Ice. She had so much fun!! But the highlight of the past month was when Mike, Sofia and I attended an amazing event called Ava's Kitchen. As you all know, Ava is Sofias bestie who we went to Hawaii with. Ava's Mom, Ashley has been working for months on a charity event for NEGU and children battling Pediatric Cancer. The evening was perfect, emotional and inspiring. And somehow, the normally quiet, and a bit shy little girls, completely transformed into The belles of the ball! They were on stage cooking with Michael Mina, smiling from ear to ear! Oh, and did I mention that the evening raised over 200K!!!!
It means so much for us that Sofia understand the importance of giving back and being grateful for every day. It's something that we will be focusing on for the next 40 days, especially. We have our "grateful bag" ready and every day during Lent we will put one item into the bag. At the end the kids will donate the 40 items to The Thrift Box in Willow Glen, where all proceeds go to LPCH.
In no way do I look at my life as easy, but I know it can be worse and we are so grateful for every moment together!!!
We have some exciting days coming in March and we can't wait to share them with Team Sofia!
For those of you who have been asking about my mom, she's doing well. She had a pretty hard time her first few months on her medicine but she's settled into a good dosage for her body. She has had some rough moments but right now she's feeling good, especially when she's with her grandkids! She comes over to visit three times a week and last week when she walked in, Noni yelled grandma! He, of course, got spoiled rotten that day!!
Thank you to all of you for your continued love, support and prayers! We feel them all!!!