2018

Oh 2018, we’ve been waiting for you!!
Today was an emotional day for us as it was Sofia’s last scheduled Lumbar Puncture! I wanted to be so excited for today but it’s hard to get excited or happy anytime you have to watch your baby get put under.
So after a better, but not great IV placement they prepped her for procedure. Even though she knew this was her last it might have been the hardest for her. As she gets older she understands more and has so many more fears. We met with the anesthesiologist and the NP to go over our usual “she gets really nauseous” talk and a plan for IV meds. Than I carry her (also getting harder as she gets older) into the room and hold her super tight until she’s asleep. I lay her down, kiss her four times, tell everyone to take care of her and walk out. Mike and I grab coffee and wait for the call that she’s in recovery. Today was the 24th time we’ve done this. 24 times in 26 months that I have watched and waited for her to wake up from anesthesia. If you’ve never had to watch your child be put under, you are so blessed and I hope you never have to. You think it would get easier, but it doesn’t. Because I wanted this to be her last anesthesia I asked the Doctor to do her end of treatment bone marrow aspiration today. This test checks if there is any Leukemia in the bone marrow and is usually done after treatment. This is the test that our Dr sends to a specialized lab to check 1,000,000 cells instead of the standard 100,000 cells. We pray that there is still no evidence of disease and that it NEVER returns! Sofia was tired and very sore today but had only mild nausea! We started our week of steroids, loaded her with Zofran and Tylenol and just cuddled all day until her nightly chemo. We hope to get her test results in a week or so and just continue with our final two months!!

The kids had a great Christmas outside of Noni throwing up and Sofia getting a nasty cold 🤦🏻‍♀️. This cold and flu season reminds me why I like to just stay home! But truthfully, this Holiday season was really special for all of us. We hope you all had an amazing Holiday and New Year celebration!

Thank you all for helping us physically and emotionally during this journey. We know life isn’t easy after treatment but we are still excited to inch closer to that finish line!
#teamsofia