Big Week Ahead

It’s been a great weekend at home, full of games, laughter, and snuggles.  Now, Levi has a big week ahead as he gets closer to the next steps of treatment.  As he has been doing so well and making so many improvements, it can be easy to overlook the side effects that can occur.  Since he is so young his brain is still in ultra development mode, which means his treatments can impact all of the things his brain controls including physical movements, hearing, vision, and learning ability.  This week he will undergo testing to see what impact it may have already have and help the doctors continue to find the balance between helping him and avoiding these effects - not always easy in the treatment of cancer!  He will start the week with neurocognitive testing tomorrow morning.  He’s such a smart cookie so we are hoping to get good results tomorrow!  He will then have full hearing and vision testing which means he will have to go under anesthesia again.  At the same time, he will have a full MRI of his brain and spine.  This is really important to tell us if the cancer has responded to the treatment he has gotten so far.  Then, finally he will have his feeding tube replaced.   

Please send your positive thoughts. prayers, and keep your fingers crossed that the MRI shows that the cancer is much less (preferably gone!), that the effects on his learning, vision, and hearing are at a minimum, and that the feeding tube stays where it is supposed to this time(3rd time is a charm).  Go Levi go!