Wow - What a Year

It has been exactly one year since Levi first went into the hospital and we learned of this awful disease.  When looking back, despite how hard it has been, it really has been nothing short of AMAZING.  A year full of Levi playing his favorite games, chopping and kicking like a ninja, reading us his favorite stories, singing songs, and, of course, asking us about our favorite colors.   He relearned how to sit up on his own, scoot and even crawl…none of which are easy feats…meeting each with the same excitement and joy - “I did it!”  He is as silly and lovable today as he was a year ago no matter what he has endured.  We are extremely lucky to have been able to witness the Amazing Levi in action.  

He remains in the ICU right now and has some big hills to climb.  His chemotherapy is complete and we are now dealing with some of the after effects of that as it almost worked too well and placed stress on his kidneys.  He has a drain in place for his abdomen now to get off the extra fluid (see the bag above - that’s coming out of his belly!) but it is a slow process.  More movies, reading stories, and snuggles while he puts in the hard work.   Our biggest hope and prayer today is that his kidneys start to work a little better so we can get closer to getting him off of the breathing machine.  
To all of you who have joined in this journey over the past year - we can’t express how thankful and blessed we are to have your support.