Speed Bump

Ava was scheduled to get her Spinraza injection on Tuesday May 15 but, unfortunately we had a small setback and she did not get her fifth dose yet. Ava woke up a bit congested that morning and as we were waiting for her turn to see the doctor the congestion got much worse and she spiked a 104 degree fever. We were already at Morristown Medical Center so went right down the hall to the ER. Ava tested positive for rhino enterovirus, another respiratory infection that presents as a common cold for adults, but can be seriously compromising for an SMA patient. An x-ray also revealed pneumonia in her right lung. She was admitted to the Pediatric Intensive Care Unit again and is under the care of the same doctors as in the fall / winter. Over the last few days she has made tremendous improvement and has been fever free since Thursday. Her spirits are back up and she is playful and chatty again. She is not 100% better yet but she should be back to normal soon, much quicker than last time. The recovery speeds is indicative of how strong she’s getting! Once she’s well she will be able to get Spinraza and get back to her therapies.