Share. Connect. Love.

Posted 2019-01-09T19:41:49Z

Happy New Year!

Happy New Year! We were so happy to spend all the 2018 winter holidays at home and with family instead of inside hospital rooms.

Ava has improved by leaps and bounds since our summer update. She's growing stronger through continued occupational and physical therapy sessions. We've stopped going to Children's Specialized Hospital and instead opted for in home therapy to avoid cold / flu germs. From her continued therapies she's now gained head control and is able to sit independently for several minutes! The head control alone was an amazing milestone but now seeing her sit up and play we can hardly contain our excitement about her progress. It really shows how miraculous Spinraza is and how hard Ava is working to succeed. She's continuing to inspire us every day. 

Ava will get her 7th Spinraza injection on Tuesday January 15. She is currently still eating via g-tube but will be going for another feeding evaluation this month as well. 

Thank you all for your support over this past tough year and for cheering Ava on from near and far. We can't wait to see what 2019 has in store for our strong little girl! 

Laura & Dan

Stay in the know. Sign up to receive email notifications the moment new Journal entries are posted

Comments (5)

  • Lisa McEntee
    Lisa McEntee

    Awww love her, and both of you! You're all the strongest people I know! <3

    one year ago · Reply
  • Marie McEntee
    Marie McEntee

    Happy New Year to the Finelli family ! It warms my heart to see the pictures of Ava. Thanks for sharing, so happy to hear of her progress. Love and peace to you. Marie

    one year ago · Reply
  • Adrienne Suydam
    Adrienne Suydam

    Happy New and Stronger Year! Ava looks amazing, I’m so impressed by that sitting posture :-) Thank you for sharing this beautiful girls story!

    one year ago · Reply
  • Linda McGeehan
    Linda McGeehan

    Such a strong, beautiful, little girl! Thanks for sharing - loving hearing all about her accomplishments.....love Ava and you guys to pieces!!!! She is amazing.

    one year ago · Reply
  • Sharon Violi
    Sharon Violi

    Way to go Ava! We're all so happy for you and hoping you keep getting stronger and stronger. Nana loves you 💕💕💕

    one year ago · Reply
Post comment comments require approval.