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Posted 2020-01-17T03:02:00Z


Finally home .... it was a rough hospital stay. I posted last on Day 3 and just now in the last day feeling well enough to share my thoughts. Days 4, 5, & 6 were pretty tough. I developed secondary issues that almost landed me in the ICU. I had trouble maintaining my blood pressure and the docs feared sepsis had settled in. My fever shot to over 103 degrees and I had severe muscle rigors that required IV meds to calm. They started a 4 hour sepsis protocol and by the end of the 4 hours I had come around some and my vital signs were slowly improving. I developed high levels of a protein that measures heart damage. Ran some immediate tests that helped ease our minds of the stability of my aortic aneurysm. I will be following up with my cardiologists at Mayo and at the UW. There were other issues addressed including blood count issues and out of range electrolytes. It is felt that we need to spend some more time addressing my GI issues and see if we can find a plan easier on my system. Currently my gastrostomy tube drains everything leaving me dehydrated and lacking important enzymes and minerals. Right now we stay ahead by having 2 days at week at the Infusion Center at the hospital. I am there over 7 hours each day.  Not the part time job I had planned on. God must not have gotten the daily calendar I sent up that had my plans for myself laid out. Oh, now I remember God’s words to the prophet Isaiah “For as heaven is higher than earth, so my ways are higher than your ways, and my thoughts than your thoughts.” Isaiah 55:9

The future journey looks daunting right now with quite a few things to follow-up on. I won’t bore you with details except to ask you for your prayers for expedient appointments and knowledgeable doctors. Also, we may need to go to the Mayo Clinic sooner than expected so prayers for clarity would be greatly appreciated. In summary, I have to say that my Ehlers-Danlos is progressing at a disturbing pace and my Mast Cell Activation Disease is contributing complicating factors. I’ve always promised to be honest and i guess vulnerable as well.

So..Here is a communication i had with my beloved Pastor yesterday:“I’m sitting here in tears. The road ahead is going to get rougher but it’ll never be rougher than the cross and I have to remind myself that almost by the minute now. God, send out an army in the darkness to find me. i know you’ll rescue me. God be my provision and my sole focus. Help me buckle on my spiritual armor. You hear me when I whisper, “I have nothing left.” Your heart causes my heart to trust your love and faithfulness will be enough.”

I am whispering now on this journey. I am exhausted. I’m whispering to you - “Please pray for Steve and me.”

Much love,



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Comments (19)

  • Molly Deines
    Molly Deines

    I weep with and for you.

    8 months ago · Reply
  • Jane Levin
    Jane Levin

    Precious friend our hearts are with you and for you and we continue our prayers for you and Steve. With much love!!

    8 months ago · Reply
  • sandra henry
    sandra henry

    My heart breaks over everything you are enduring, precious Lee and Steve. Jesus intercedes when all we can do is groan or cry. I pray that God will give you, Steve, and the medical professionals everything you need. May God give you relief and healing. We love you so much.

    8 months ago · Reply
  • Steve Braden
    Steve Braden

    Uncle Steve and I are hurting inside. I know we’re not close in body but Gods sweet spirit can wrap his arms around you for us. We are praying for those appointments and doctors. We love you guys.

    8 months ago · Reply
  • diana moore
    diana moore

    Tears. I love you so much. Praying.

    8 months ago · Reply
  • Stephanie Patchin
    Stephanie Patchin

    Praying with and for you dear friend. Even when my words fail and I don't know what to say or how to pray for you, my heart is crying out to God. Your sweet reliance on the faithfulness and heart of God is beautiful. Your whisper to Him in your exhaustion resounds like a trumpet, displaying your awe-inspiring faith. I love you and my heart will continue to cry out to God for you. I thank Him for the light you are. You cannot help but reflect the beauty of God, especially in the times of greater suffering than I can imagine, and it changes more lives than you can possibly know. Leaving traces wherever the light has touched.

    8 months ago · Reply
  • Tom and Linda Hamilton
    Tom and Linda Hamilton

    Praying. Right now. ❤️

    8 months ago · Reply
  • Ellen Bunch
    Ellen Bunch

    I really wished I was close so I could help you and Steve but I have a God that can do much more than me. Praying for you and Steve.... love ya Lee Bob

    8 months ago · Reply
  • Jennifer Keller
    Jennifer Keller

    I’m completely at a loss for words, not that my words would help much, anyway. You are loved. I am offering my prayers, not because that’s all I can do, but because it’s the best I have. ❤️

    8 months ago · Reply
  • Teresa J Brooks
    Teresa J Brooks

    Dear Lee: I'm so sorry for your continued suffering and am amazed by your perseverance in relying on God's mercy and grace. Please know that I am holding you and Steve up in prayer that you receive clarity and relief through God's mercy. Love you both! Teresa

    8 months ago · Reply
  • Eunice Goodwin
    Eunice Goodwin

    Tears for your suffering, but so in awe of your faith! This post reminded me of a song we old timers used to sing. Much love and prayers for you both, Eunice and Dan Soft as the voice of an angel, Breathing a lesson unheard, Hope with a gentle persuasion Whispers her comforting word: Wait till the darkness is over, Wait till the tempest is done, Hope for the sunshine tomorrow, After the shower is gone. Whispering hope, oh how welcome thy voice, Making my heart in its sorrow rejoice. If, in the dusk of the twilight, Dim be the region afar, Will not the deepening darkness Brighten the glimmering star? Then when the night is upon us, Why should the heart sink away? When the dark midnight is over, Watch for the breaking of day. [Refrain]

    8 months ago · Reply
  • Vickie Hill
    Vickie Hill

    Sending our love and prayers for you and Steve.Such a long journey you have had to endure...but you are so faithful to praise God in all your struggles. Psalms 63; Psalms 18:1-3; Psalms 62:1-2.

    8 months ago · Reply
  • Amy Moore
    Amy Moore

    My heart if broken for you & Steven. You are asked to walk a road that you don't deserve. I commend you faith to remember Christ suffering was so much more than ours, but that is a daily task to remember that. I wish I could remove this burden from you. I love you dear friend. Keep your faith. Know you are in our prayers.

    8 months ago · Reply
  • Bruce Ensign
    Bruce Ensign

    Count on our prayers for you and Steve. We love you guys and are distressed by the suffering you have experienced and continue to face. We love your faith and wisdom to call upon the Lord, and are so encouraged by that. The Lord is accomplishing His purposes through your life. He will be with you all along the way and many people love you two and are praying for you each day.

    8 months ago · Reply
  • Judy Wilson
    Judy Wilson

    Dear Lee, my calendar is not full. Please let help. I am happy to come sit with you. No conversation needed, just presence. Prayers for you and Steve.

    8 months ago · Reply
  • Nina & Kevin Davenport
    Nina & Kevin Davenport

    You are in our prayers. We are here for y'all. Nina and Kevin

    8 months ago · Reply
  • Jim Dickson
    Jim Dickson

    Hey, Girl, you know me - a little irreverant and slightly off the beaten path, but seems to me that you are trying (ok, maybe inadvertantly) to set some kind of medical record here. All I can give you at the moment, other than a big Marine hug, is this..... You never know how strong you can be until being strong is the only option left. When you run into obstacles, go over, under, around or through them. I'll be standing by out here in the tree line waiting for your red flare to go up, and then I'll be there for you. As always, Your Friend, Jim

    8 months ago · Reply
  • Kelly Anderson
    Kelly Anderson

    Kirk and I are praying for you and Steve, that the Lord will answer every need. Our hearts ache for the trials you are enduring and we pray for miraculous healing. We love you!

    8 months ago · Reply
  • Crystal Van Tine
    Crystal Van Tine

    Kyle and I are with you in prayer, and you are both on our hearts.

    8 months ago · Reply