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Posted 2022-08-26T18:10:08Z

August 2022 Update

Well it’s that time again! I had nothing but positive thoughts going into my August 23rd MRI scans. I just said to myself There will be no tumor in my brain. That’s it! I woke up that morning at 5:45am to get to my 8am MRI check in. I skipped my morning coffee to be sure I kept that sleepy feeling so that I could get a little nap in during my scans, as they piped in my requested Spotify station “Your Favorite Coffeehouse” You know the one with the brown background and the latte in the foreground. That’s the instruction I give every radiology technician, and please put the contrast in VERY SLOWLY!

We sat down in Dr Taylor’s office and waited as she opened up the images on her computer and swiveled her monitor towards us as she said THIS IS EXCELLENT. Then she explained to Dan and me that there was something new that she visualized on my scans, and that it appeared the radiologist took the images in a different sequence than what she’d seen in the past and she was happy to see this sequence. To me, it looked like there were dark holes or Swiss cheese in the areas that were previously thought to be tumor recurrence or post radiation necrosis. But Dr Taylor clarified that these were called dystrophic calcifications and are as a result of treatment. They’re also referred to as cavernomas (small oval abnormal blood vessels created by the radiation treatment). I’m learning something new everyday! She also said “There is no evidence of tumor in my brain!” Pinch me! After these last few years,  These words were long overdue!

In other news, I’ve been working with a new PT recently who I adore. I knew she’d be great when I walked in with my quad cane and she said “we’ve got to get rid of this old lady cane”. That session, she brought out every style of single point cane the rehab department had. As I tried each cane, She timed me and watched me walk. Turned out I walked faster and was stable using the single point cane but not the walking stick :( which she said “reads younger”. I started exclusively using the single point cane a few weeks ago, and I’m not turning back! She also gave me a daily step goal of 2000/day. And once I proved I could do that, she said my new goal is 2500/day. And I’ve been meeting that easily! In fact yesterday, I surpassed 7000 steps! Still working on my OT and my left arm and hand but she’s (my left arm) so stubborn. 


What’s next? Per Dr Taylor’s after visit summary “Follow up with brain MRI in 6 months”

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Comments (12)

  • Rachel Hyman
    Rachel Hyman

    Ha ha. You walk more steps than I do. 😂 What wonderful news you received! Praying for your continued healing.

    one year ago · Reply
  • Nora Paille
    Nora Paille

    Eden, this is FANTASTIC!! I like to think your positive attitude manifested this outcome - who knows? However it came to be, such great news. Off on new adventures with a light heart, you go! Nora and Fred

    one year ago · Reply
  • rumiana renard
    rumiana renard

    Fantastic news Eden! Keep up the good work 😘

    one year ago · Reply
  • Brandan Wilburn-Herbert
    Brandan Wilburn-Herbert

    Ma’am! This is amazing! Congratulations and blessings to you!

    one year ago · Reply
  • Nicole Herdener
    Nicole Herdener

    So awesome Eden-this is fantastic news. Happy to hear about your new cane as well. I’ll be seeing you soon hopefully to keep you company while you get your steps in!

    one year ago · Reply
  • Dawn Klinghoffer
    Dawn Klinghoffer

    Awesome news Eden! Keep up the amazing work!

    one year ago · Reply
  • lisa mildenberger
    lisa mildenberger

    That’s fantastic news Eden! Love that your PT got rid of your “old lady cane.” Looks like you are rocking that swanky new cane with all of your steps. Xo

    one year ago · Reply
  • Eric Huang
    Eric Huang

    Wonderful news Eden. We are so happy for you! Keep on stepping!

    one year ago · Reply
  • Pamela Koffend
    Pamela Koffend

    I am so gladden by this news for you and the family. You continue to be in my prayers— you are such a warrior!

    one year ago · Reply
  • Mikhaila Barg Reudink
    Mikhaila Barg Reudink

    Amazing wonderful report dear Eden!!❤️❤️

    one year ago · Reply
  • Devon Jackson
    Devon Jackson

    Hooray! You are (always have been and always will be) an inspiration. Thanks so much for sharing your good news and your journey. (And I’m going to check out that Spotify station!)

    one year ago · Reply
  • Kelly Donovan
    Kelly Donovan

    So happy for you, Eden! Thanks for sharing your amazing news. All the best to you, young lady 😉

    one year ago · Reply