Her humor is intact...
Gracie is looking forward to the NG tube (her feeding tube) being removed from her nose. They will be replacing it with a PEG. This is procedure where a flexible tube is inserted through her abdominal wall directly into her stomach. It eliminates the need for an NG tube (they effectively do the same thing), and will remove the discomfort of having a tube up one's nose.
It is a surgical procedure, but Gracie says she likes surgery! It's the one time she can fall asleep with being disturbed... shows her sense of humor is still intact as she's poked, prodded and turned all day and even in the night. A simple thing like undisturbed sleep is a commodity not just for Grace but for her parents, too.
On a different note, we have a confirmed admittance into Graig Hospital, but a departure date has not yet been set. It will be Monday at the earliest. Bill, Emily, and I will be staying with Gracie for the duration of her rehabilitation... we don't know exactly how long yet, all depends on her progress, but will be 2 to 3 months, possibly more. Emily will enroll in a high school in Denver, but probably in a modified day so that she can participate in Grace's rehabilitation and just give sisterly love.
Thank you all for your love and support,
Debbie
Comments (30)
Wonderful you can all be there as a family... Expect miracles. Love to you all.
Hugs to our Gracie! We send prayers to you all for this big move. I have only heard amazing things about Craig Hospital. You all will be in exceptional care in Denver. Love to you all!
Gracie, so glad your sense of humor is intact. Keep it going girl. I want to send you some Americana video/music while you're away. Let me know the way that works for you. love and prayers, Steve and Debbie Stewart
Thank you for the update. A sense of humor is like gold.
Thank you for sharing your news with us. I love being able to picture each of you today, feel your abiding love and send my prayers and love right back to you all. I wish I could give you each some sleep today, too.
I'm so glad you all can stay together as a family. We'll be keeping all of you in our prayers each and every day. Much love, ~All the Cetti's
Thank goodness! You can manage anything with a sense of humor!! The constant tap of love is still coming your way.
Blessings on you, dear Gracie! You are amazing!! You will be going to Denver with so much love going with you, even though your local support group cannot be there in person. We trust and pray for good things to happen there, and when you return, so will your total wellness! Marian and Dave Winters
Not sure if you read these.I do know two people in Denver if you need a local person. continued love and positive energy
Is there an address so we can send mail?
Keep smiling Gracie! We are thinking of you constantly and we take great comfort in knowing that God is watching over you. SO glad to hear that you can make this next journey together as a family and we pray for your continued strength to overcome this. We love you and Kate sends lots of hugs and kisses in your direction. Much love, The Agnoli's
We are praying for you, Gracie. Keep listening to that music inside you. /s/Mark and Debi Bateman
Rehab will be the step towards regaining that degree of predictability & control in your environment Grace- opposite that often found in an ICU setting. Godspeed to you sweet girl- one step at a time towards independence! XxOo
Thanks for the update, love you! I was watching videos of State of Grace playing to show at the lunch on Saturday, want me to forward them to you. Gracie, you are sooo awesome! Sara, Chimaway and Casmali
Debbie: one of my best friends lives in Denver and has a senior at East High School. Let me know if you want their contact info. I'm sure they would be happy to help you.
Good luck on the transition! and Emily and Gracie actually sent me a selfie the other day with Gracie making her classic snapchat face (which I have missed seeing). best wishes on everything!!! love you Gracie and Emily you too 💗
We are so grateful for this site so we can stay updated. You all are constantly in our thoughts and prayers. Safe travels!! Katie and Bill
I have tears for all that Gracie is going through, and I have hope for a good outcome based on the fact that she is receiving the best care possible and the spectacular support from friends and family.
Hang in there! Gracie should be a lot more comfortable without an NG tube! Thankfully, unlike having a tracheotomy, having a g-tube/PEG put in is more of a procedure than a surgery. Usually done under light sedation and as an outpatient, unless the person getting the PEG is already in the hospital. And both the trach and the PEG can be removed when she no longer needs them.
There is nothing better to brighten my day than a smile on Gracie's face!
I am so happy for all of you despite how difficult this temporary move may be. It is SO encouraging and heartwarming to know that Gracie will be in excellent hands and receive the BEST care and therapy that she needs to recover. Having such loving parents and a super supportive sister right there will surely speed up the recovery process! We will continue to pray for her safe arrival to Denver and cheer her on through this journey, Love the Tagawa Family
Our girls ask about Gracie every day. Megan prayed for her to get better faster just a few moments ago. Hoping for a heap of small miracles...Bart Krista Megan & Julia
Beautiful Grace, you are in our thoughts daily. You are strong and you are surrounded by such love, we hope the improvements keep coming. Wishing for you that the move to Denver will help in your healing. xoxoxo Heidi, Franz, Sophia
It is wonderful you all have a place to go for exceptional care, including a school for Emily. I am glad you all get to stick together-that will be a strong support system for Gracie.
Gracie, I was telling my sons about what a special person you have been in our lives ever since we met you in Utah 6 yrs ago, how Aidan went looking for you in the hotel, knocking on every door. We love you so much & pray for you constantly. Alita & family
What a Family doing it all together even sleeping! Please tell Emily she is an amazing sister who has chosen a brave path by going to a new temporary school in Denver. Gracie must be thrilled to have Emily with her. We love you all and will be thinking of you and praying for you each and every day. Safe travels. Nancy and Clint.
We just want to send our love and blessings. I so enjoy reading these updates and seeing the progress and love and faith.
I'm so glad that your family will be together as Gracie goes through her rehabilitation in Denver! All our love and prayers will be with you as you all make your journey. I lived in Denver for three years before moving to California, and I know Denver will bring your family great blessings, as it did me...Doug and I met there 25 years ago...! Natalie, Doug and I are keeping you, Gracie, Emily, Debbie and Bill, in our thoughts every day.
Gracie, we are so happy that you are going to get the help you need in Denver! Such a blessing that the whole family can stay together. Please know that my family is praying for you every day and sending positive thoughts your way. We love you so much, you are like family to us. Good luck and hang in there. We have faith in you and God and your recovery. Keep smiling!!!!! ❤️ the Pitneys
Enormous hugs and healing thoughts for all you Fishers! We will push love from Santa Barbara in warm waves... love, Thalia and Kaeva