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Katelyn Marie

This site is dedicated to our daughter, Katelyn Marie Lehigh, born on January 5, 2013 at 32 weeks. This site highlights what happened with Katelyn and her rare genetic skin condition, Epidermolysis Bullosa (EB). She had Junctional Epidermolysis Bullosa with Pyloric Atresia (JEB-PA). We greatly appreciate all of the support and prayers Katelyn has received. Katelyn lost her battle with EB and passed away peacefully in her mother's arms at 1610 hrs on January 22, 2013 surrounded by friends and family. She was one of the many lives EB has claimed; together we must find a cure!