I apologize for not posting since April. I feel like I needed a "time-out". It’s been 3 months since we lost our butterfly princess. It’s hard to believe it’s been that long. Some days I can manage the grief well, others not so much. To look at me you’d never know. I don’t know if that’s a good thing or a bad thing, but I suppose it’s just my way of coping. I’m not one to share how I’m feeling very often. If you ask how I’m doing, you’re always going to get a “fine, thanks”. One of my husband’s coworkers, who has supplied tremendous support and who has also been through her share of misfortune with her children, tagged me in a picture in FB that sums it up well: “you never know how strong you are until being strong is the only choice you have”.
In honor of our daughter and son that we lost to Epidermolysis Bullosa (EB), truly the worst disease you’ve never heard of, we are heading to Minnesota to participate in a 5k to help raise awareness and funds to find better treatments and hopefully a cure. If any of you live in the Twin Cities and would like to join us, the more the merrier! If you can’t please consider making an online donation to help support other children like baby Katelyn. There is no donation too small. Thank you so much for following our journey and continuing to support us and raise awareness for EB. - Katy