Hello fans! Sorry for my delay in updating on my journey.
I finished chemo about 5 weeks ago and I am 2.5 weeks into radiation.
I am thrilled to be done with chemo and am starting to get my full energy back! The last 4 rounds were on Taxol. Which definitely made me feel better than the AC, less nausea. However there is an allergic reaction to Taxol, which causes about 3-4 days of severe bone and muscle pain each round. And not much helped to ease the pain, it felt like my joints and my legs were in a vise being squeezed. Going through the last round I was grateful to know that it would be my last time with bone pain. And lots of fatigue, I've never felt so tired and weak by the end of 18 weeks of chemo. At my last chemo infusion I had the opportunity to ring a gong in celebration!
The week after I finished chemo I had a 4th surgery to remove my chemo port. That's another reason to celebrate! I felt like a cyborg with the port in my body. I could feel it all the time and I am so excited to have it out. That week I had a surgery, radiation simulation, mammogram (that looked good), met with my surgeon, x-rays, and radiation.
I started radiation a little over 2 weeks ago after the port removal. I have radiation 5 days a week for 6 weeks. A total of 32 sessions, I am about a 1/3 of the way through. Radiation takes about 5 minutes on the table, 5 minutes to get set-up and about 30 minutes total from arriving to leaving on most days as long as there is no wait. I went in for a simulation and they gave me a few small tattoos to mark where the machine should hit me. It is a TruBeam machine which is an accurate machine that only radiates to the target area. The major short side effects are fatigue and skin irritations. So far both are minimal but they say they could get worse in weeks 3-4. I am hoping I can avoid the skin irritations. Hoping this is the last leg of the journey, the final step is hormonal treatment which is Tamoxifen, a drug I will be on for 5-10 years.
I have ideas for more stories so I will write soon!