October 14, 2016

Louis is a month old, as of yesterday. And we finished reading The Fantastic Mr. Fox today.

Last night, he had his ventilator (breathing tube) removed and he has done well without it all day and night. He was also taken off all sedation medication. He is still a bit swollen from the medications but he is becoming more alert. We have had a handful of tender moments with hand holding and eye contact. Dan and I are drinking it up. His sweet little voice is so hoarse. His cries were silent yesterday evening and today they sound very raspy. We were able to hold him again and it's getting easier with less tubes to navigate around.  

I am savoring each moment because I know I will be tested next week. We have two more full days of Louis before his heart repair and while I am thrilled he is improving and is ready for surgery, I am terrified of what next week holds for us. I can barely think about it. 

My sweet darling baby Louis, I love you so so very much.