Just a note in the middle of it all

  There is this site called, TheMighty , written and edited by families dealing with terminal illnesses. There's a lot of  insight on CHD and perspectives from patients and parents. I wanted to add this passage on Louis' page with the intent that one day he will read it and have a tiny window into what his mama has felt through his journey.  I'm always worried about how he will feel when he's older. He will face more surgeries and I don't want him to feel embarrassed by his scars, or upset at me for feeling so much. 

Its the least of our worries but it's still something I think about it.