Ready for operations tomorrow...
Lyla was admitted into the hospital this afternoon to get ready for her pre-transplant operations tomorrow. She just received a blood transfusion to get her hemoglobin levels up and she's now starting on Milrinone which will also help her heart not have to work so hard. Going into any operation with heart problems is concerning but we feel confident that the medicine and extra blood will help a lot.
As long as her cold doesn't get worse (or else anesthetist won't allow operations), she will go into surgery at 11am tomorrow and will be gone for 3-4 hours :( Although all are fairly minor, she has a long list of things to get done:
Port Catheter (IV line under skin used for enzyme infusions in the next 2 months); GT tube (valve out of stomach to allow food to go directly into stomach during transplant process); Lumbar puncture (collects spinal fluid around the brain and spinal cord); Ear tubes (to allow fluid to drain and prevent infection during transplant process); and finally a Brain MRI
Fingers crossed for our brave little girl tomorrow ♥
Comments (17)
Good luck my darlings. You will all be fine. Big hugs. XxxxxxX Nan Rita
She is a little trooper...everything will be fine. Xoxox
Praying now and will pray every time I think of it tomorrow! Sweet little baby is so lucky to have such great parents! xoxo
We will be thinking of you three and waiting to hear how well Lyla did with her surgery. Hugs and love, Barb, Adam and Tanner
Praying for you continuously. Be strong and courageous.... God is with you. Sending our love! Brian, Lorie, and Conner
Thinking of you all. Lyla is a strong little girl ❤️ Hugs to you all. Marco, Em and Lauren xx
Will be thinking of you. Lyla is a strong little girl so I know everything will go well Love you!
Thinking of you all xxxxx
Thinking of you and sending all our love and best wishes. Lauren & Joe. Xxx
I wish the best of luck to you all X
Father God please direct the hands of the doctors working on your baby girl little Lyla. Grant peace to Helen & Steve while they wait, removing all anxiety, comfort them. Thanking you in advance in Jesus' name....amen
Thinking of our brave little granddaughter, we look forward to hearing that all has gone well. Lots of love to the three of you. Helen and Stephen you are coping remarkably well, stay strong. Nana and Granddad xxx
Sending prayers and good thoughts your way!! Lyla's got this!!! Lots of love!! XX
Thinking of you all and sending lots of love and good luck from me, Luca and George ❤️ xx
Thinking of you all guys, sending love and best wishes x x x
Sending big hugs! Lyla is going to do great!
Best wishes guys. Dan and Claire x