Lyla has left the building...

After a long week in the wonderful university of Minnesota children's hospital Lyla, Helen and I are heading back to phoenix. All the doctors and nurses were amazing and Lyla was fascinated by all of them. Lyla successfully had a blood transfusion on Thursday and on Friday she went under and had ear tubes fitted along with an iv port and feeding tubes. She had her first dose of enzyme treatment today and was feeling her normal self by this afternoon. The next step is to sit tight  back home and wait to find a doner, which could be as quick as 2 weeks. Lyla will be having weekly enzyme therapy at Phoenix children's hospital    For hopefully 8 weeks before heading back to Minnesota . Lyla gives you all lots of kisses for caring about her x x x x x x x x