Dear Friends and Family:
Sarah and I are writing this entry together as she isn’t feeling particularly well but wanted to let everyone know how she is doing. To coin a phrase, “things could be better”. On the other hand, they could be worse, though not by much. The last several months have been a struggle that was punctuated by a nine day hospital stay during which a feeding tube was placed and, several weeks after that, the implant of a continuous drug delivery pump to help manage pain. In spite of the feeding tube which delivers food directly to the small intestine where it is safe from involuntary expulsion – Sarah has not been able to obtain enough nutrition to sustain her. Her weight and strength have diminished greatly, to the point where, for all practical purposes, she is bed bound. The pain pump has been a blessing but we have struggled to keep up with the growing pain.
Yesterday we had a social worker over to the house to talk to us about hospice care and she made a comment along the lines that, when it comes to our health . . . eating . . . drinking . . . life . . . sometimes we don’t get to choose; and, it would appear that is where Sarah is today. Sarah’s body has essentially decided that it no longer can tolerate food and the pain grows almost daily; and so, she will enter hospice care and that is something we never dreamed we would have to choose.
Words cannot express the gratitude that we both feel for all of the support that has been provided by dear friends, family and even many that we have never met. People have been so giving over the last 2 ½ years and we lacked nothing because of your overflowing generosity. Sarah is at peace as she enters this final stage of life, knowing her awesome future, but deeply regretting leaving those she loves.
Scott & Sarah Gjesvold