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Posted 2017-10-22T18:12:26Z

Another week, a little better, and Croatian Comedy Aspirations

I continue to feel a little better each day. I guess since I'm on a new chemo and I'm in a holding pattern, I have my illness ever present in the front of my mind. Physically I feel pretty good, I just wish I could stop expecting myself to be where I was before the surgery. I mean, come on. The surgery was September 20 for crying out loud! Here we are a month later and I'm constantly second guessing my energy levels, sleeping patterns, incision discomfort, and food consumption. I've got to stop it. Someone tell me to stop it!

The good news is that I've had zero dizzy spells this time around. After the first surgery it took months to be able to bend over, squat, or stand up at a normal speed. I've had none of that this time and Jason says he thinks it is because after the first surgery the rest of my brain had to decompress and go back to where it belongs. This time my brain was not being smashed and therefore can just stay where it is. I also don't seem to have had as much inflammation this time from the surgery itself. I guess when they go cutting your brain, the remaining tissue gets inflamed. Who would have thought?! Many in the GBM community use alternative methods to control the inflammation in order to get off of the steroid earlier. Some use Boswellia, Turmeric, and the ketogenic diet for these purposes. The research seems to show evidence that these methods can be effective for decreasing inflammation and swelling, so I'm in. 

I'm feeling good about my diet. I'm keeping it as high fat and low carb as possible so that my GKI index is staying firmly within range. In fact, my glucose and ketone measurements (taken by finger prick) are very stable. Glucose is staying in the 80s or lower and ketones are way above 2, which is the accepted range to be considered ketogenic. I am currently putting my recipes in a document geared toward creating a cookbook. I may have high aspirations there since between my job, self care, and family life, I may or may not have time to get it published once I have the recipes in the document. In the long run, I'm also considering how to adjust and reorganize the blog posts with an underlying theme to be published in one hard volume. The biggest issue is although you guys like to read it, I'm not sure if normal people (that's right, I'm speculating about whether any of us fall within the range of normal) would enjoy reading a memoir detailing the trials and tribulations of GBM. I mean, let's face it. My own husband doesn't find the blog all that interesting and says I'm one of the least funny people he knows. I don't know if I've mentioned this before, but when Kim and I vacationed in Croatia in 2015, the people there enjoyed my sense of humor and we made many fast friends. Since Croatians, as a general rule, find me hilarious, a former student floated the idea of a stand up comedy tour of Croatia where I could sell signed books after each show. I think this could be a brilliant move on our part. I could be the star comedian of Croatia! Imagine the possibilities!

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Comments (12)

  • Louise Hudson
    Louise Hudson

    Well, Shannon. Does Jason not, after all these years of knowing you and being your husband, know the meaning of WRY??? You're a STITCH. Poor Jason. 💖💖💖💖💖🤣

    8 years ago · Reply
  • Louise Hudson
    Louise Hudson

    PS, Blog away. Cookbook-write, surely you've time for that!🤓 And, yes the GBM community can benefit from your blogs and input. Hugs

    8 years ago · Reply
  • Gail Madison
    Gail Madison

    Re: the first part of this post. STOP! As for a book, with the right promotion, say, Brain surgery---the stuff of comedy, I predict a best seller, esp. If the cookbook comes along with it as a bonus. Now, a comedy tour of Croatia sounds brilliant. Get going on that one.

    8 years ago · Reply
  • Retha Keown
    Retha Keown

    Definitely I’m in on the comedy tour!! If I wasn’t crazy I would not be funny! I like funny. You just stay the course and have faith in what you know to be the best road! We all love you and are with you all the way to the top

    8 years ago · Reply
  • Jule Gassenheimer
    Jule Gassenheimer

    Your blog is not only funny but real and filled with courage and hope. Just a reminder, do not be so hard on yourself - STOP.

    8 years ago · Reply
  • Cynthia
    Cynthia

    I must be croatian! Love you.

    8 years ago · Reply
  • Cassie Rinaldo Schultz
    Cassie Rinaldo Schultz

    I love it! Both books are great ideas, inspirational and practical too. Glad you are healing faster this time, but you’re right, it was still brain surgery! Might need to postpone Croatia tour for just a little while ☺️

    8 years ago · Reply
  • Ann Rodriguez
    Ann Rodriguez

    Happy to hear about the numbers! And, hate to disagree with my friend Jason, but you are about as hilarious as they come! Sending love as always!!

    8 years ago · Reply
  • Katherine Holbrook
    Katherine Holbrook

    I think you are hilarious. Always have. Pish posh Jason 🤗

    8 years ago · Reply
  • Megan Leah Winfield
    Megan Leah Winfield

    Stop it. 😉 Let me know if you need help with the cookbook. Believe it or not I've done that before. I also have a friend who is an amazing cookbook author who has a sister who had GBM years ago, I suspect this might be a project she would help me with. I think lots of people could benefit from your blog and story as well. ♥️

    8 years ago · Reply
  • Kathy Suchy
    Kathy Suchy

    I've got an idea for the name for your book!!! "....Čovjek uđe u bar...". It is the Croatian translation for, "...A man walks into a bar..." By the way: I'll buy a copy!

    8 years ago · Reply
  • Dianne Anderson
    Dianne Anderson

    You are one spunky gal! Keep it up, and inspire the rest of us to improve our acts as well. You ever continue in my prayers.

    8 years ago · Reply