Going Home
We got the news at 8am, we were going home. Sofia's labs were still stable and still no fevers which means we were being moved to outpatient care. Her platelet number is lower than we would like so we are on alert for any bleeding. So we began packing up our room in preparation for discharge. As our potty book says, we sat and we sat and sat.... And finally got our meds and were on our way at 7pm! Masks were on and we were out. Being home is a great and extremely frightening. Though our home is a much cleaner environment for Sofia's compromised immune system, we don't have the peace of mind that you have with amazing nurses right outside your door. I asked our nurse Sarah about a million what if questions and practiced flushing her Picc line one more time. Now we're home! Sofia ran into the house and picked up right where she left off. She is experiencing a lot of jaw pain from the chemo so she hasn't eaten anything which means I ask her if she can please try to eat about every 10 minutes. Yep, I'm the walking definition of a nervous wreck!!! We are heading back to Lucille Packard on Thursday for labs and a possible platelet transfusion and then again on Friday for another Lumbar puncture and more chemo. Our new normal. But the best news of the day for Sofia is that she now gets to sleep with Mommy and Daddy. Best news for mommy and daddy is that I have both of our babies right next to us all night!!!
Comments (12)
Home!! Yes!! So glad that you are back with both your babies. Thinking of you every second and keeping the prayers up all the time! Love how Sofia just picked right back up--kids are absolutely amazing and their resilience is our salvation. Love y'all so much.
Home sweet home. That is wonderful news.
So happy you are home. You guys can do this. I am confident in you guys.
Who wouldn't be a nervous wreck? Very proud of the way that all of you are handling this battle. Just know that you have a huge cheering and support group.
So great to hear that you'll all be together tonight!!! Cuddle up! :) stay strong sofia!! You got this!! <3
Glad to hear Sofia was able to return home. Being at home will make life for her a little easier with her loving family surrounding her. Your family is in our thoughts and prayers.
This is the GREATEST NEWS EVER!!! I'm so happy you are home. I'm praying every day for you, and this one was answered! Love you guys so much. Xo, Heather and Family
Great News! Welcome Home and snuggle in. Xo The Theakers
Good to hear your home! I think about Sofia everyday and send prayers and positive energy her way, she is a special little girl and God truly has his hands on her. God Bless you Mike and Gina!! Much love, Donna
If one thing comes out of this, it's that your family unit will be so strong!! I'm so thrilled to hear she's home in your bed and snuggling with mommy daddy and baby brother. I'm sure she's just loving being back with her things, praying everything goes well when she heads back to LP. Praying every day and thinking of you 24-7. Love you!!! Meg and fam
If you ever need a nurse I'm about 5 minutes from your house!! So glad she is home where she belongs.
Praise the lord! Welcome home Sofia! Enjoy sleeping right next to mommy, daddy, and baby brother too.