Day 11

Well its been 6 days since we have gone home and they have been busy, scary, eventful, but most of all comforting to be home. Sofia is much happier and at ease to be at home with a chance to play with her toys, sleep in our beds and watch our tv! We managed to get through a fever scare. Luckily sofia only got to 100.6 once for about an hour, which means that we did not have to rush her to the hospital. We are still struggling with our medicine because as sofia says "I don't like it! ", so daddy tried it, and I must say it did in fact taste terrible. Since being home we have gone back to the clinic 3 times, including today. We have gone for a dose of chemotherapy, to flush a line that both mom and dad could not do, and today which we thought would only be about an hour long, but we have been at lucile Packard since 8am and it is now 4:30pm and we will probably be here for another hour, at least. All in all, we are extremely happy that sofia has had minimal side effects and for the vast majority of the days she has been her happy and playful self. We know that this is going to be a constant struggle with lots of sick days, lots of lengthy hospital visits and many other things, but as long as we stay positive we know the fight will be won. 11/740 almost done! And as always we thank all of you that are sharing your prayers for sofia, and those of you that have contributed in countless other ways. We love you all.