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Posted 2016-04-18T05:16:40Z

3 down, 1 to go!

Well this high dose methotrexate treatment is keeping us on our toes. Every round has been just a little bit different. We did not hit early clearance this time, but we still cleared faster than the first round. Either way, we were very happy to hear we cleared and got to come home and enjoy the beautiful day!! Sofia wasted no time, wanting to get right in the pool. It's pretty amazing how she transitions from hospital life to home life and vice versa, so quickly.
When we arrived to the hospital on Wednesday, Sofia went in for a lumbar puncture with spinal chemo. Though she's had this done a number of times this time was rough. She woke up as she usually does but within a hour she started to feel really nauseous. They gave her a secondary medicine but it didn't help much. She ended up getting really sick and throwing up for over an hour. She has definitely vomitted before but nothing like this. It was so sad to see her like that. They decided to give her another dose of zofran and add in some Benadryl. The vomitted stopped but she was loopy! When we woke up the next morning we had our girl back. Smiling, laughing and dancing around the hospital. We played games, lots of crafts in the playroom and Sofia even gave daddy a manicure (which he still has). We expect this week to be like the others, where she feels ok but has no real appetite until Saturday when she starts to eat and doesn't stop until we start round 4 a week from Wednesday.
With Noni getting bigger this juggling act is getting a bit tricky. We are just happy he's not crawling yet and we can still keep him contained at the hospital. I have to say the best moment of the day when we are there is in the morning when Mike and Noni walk in. No matter how she feels she lights up when she sees her brother and he of course, he gives her a pretty great reception. We are so incredibly blessed to have such amazing kids.
Again, we want to thank all of you for your support and prayers. No days are easy but some days are great, and today was one of those days!

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Comments (1)

  • Colleen Koblis
    Colleen Koblis

    Glad to hear everything is going well and just one more round for now! Sofia is a brave and strong warrior! Her brother is very lucky to have her for such a great role model! Our thoughts and prayers are always with you.

    10 years ago · Reply