Done with Interim Maintenance!!
We are home and done with Interim Maintenance!!
Our time at home between round 3 and 4 was not fun. Sofia, some how, caught a stomach bug and was sick for about 4 days. Crazy to think that the stomach bug has made her feel worse than chemo. Luckily her counts recovered just in time for her to start her forth and final round of High dose Methotrexate. We checked in late of Wednesday night and she started chemo at 1am. I hate starting in the middle of the night because I have to stay up all night for the start and the stop 24 hours later. Either way all went well and very smooth (4th times a charm).
About 2 weeks prior to this I was contacted by the Love your Melon campus crew at SCU. Love your Melon is a beanie company that was started to raise funds and awareness for Pediatric Cancer. In addition to selling their beanies online they have campus crews at colleges around the country. These kids raise awareness and work with kids battling cancer in their cities. The SCU crew asked to come over to our house on the 28th, which was National Superhero day. When I told them that we were going to be in the hospital they worked up a plan to come surprise Sofia, decorate her room and spend the afternoon playing with her. Well, the day went great! Sofia was so surprised and these girls were awesome. They colored, sang songs and ran around the hospital "flying". The next morning she asked if they were coming every day. It was a memorable way to spend our last scheduled in patient stay.
This morning the Doctor agreed to do an extra set of labs because we were so close to clearing in the middle of the night. Luckily she cleared and we were discharged by 10am. As usual we will have a couple days of nausea and low appetite but hoping she will feel good by next weekend for Courageous Kids day at Great America, where Sofia will be featured as an Ambassador.
Though we still have nightly oral chemo we have about 16 days until we start our next phase called Delayed Intensification. I am scared to death of this phase as it is the hardest of these past few phases. It will be about 8 weeks long and Sofia will most likely be neutropenic and not feeling well though most of it so we will be staying home.
Today, we will just focus on what we have accomplished and enjoy being home as a family. Noni (who turned 7 months yesterday) has started to inch worm across the floor so he wasn't very happy in the hospital where I wouldn't dare let him on the floor!!
So incredibly grateful for all of your love, prayers and support!! #teamsofia #sofiastrong

Comments (5)
Thanks Gina for the update, it's good to hear that Sofia is doing well and hanging in there through all of her therapy's. We continue to pray for Sofia's recovery!
Gina, thank you for the update! Happy to hear Sofia is hanging in there. We send you positive thoughts and keep Sofia and your family in our prayers!
You are doing a great job of staying strong, G. We love you all and are praying constantly for your whole family's strength and health! xoxoxo
Sofia is such a trooper! Our thoughts & prayers go out to you daily.
Love how Sofia is in her bathing suit two minutes after you got home! Her sweet smile warms my heart💕