Update
It’s been a very hard day. Levi started having seizures again but after some time they were able to get them to stop. As is typical, Levi was more concerned with others, using his first words when coming back to us to ask “Mommy, how are you doing?”
Unfortunately, the seizures started again and in order to control them, they are needing to put him on heavy medication which requires him to be back on the ventilator/breathing machine. He’s a really sick little boy right now...but hopefully with a little more time on the new medications that they have started today, we will start to see signs of improvement.
Please keep all of those prayers, thoughts, and positive vibes coming his way!
And, yes, that is a snot bubble in the picture above...things like that make Levi laugh ridiculously hard so we’re going to take it an hour at a time until we get to hear that silly laugh again.

Comments (6)
So sorry to hear the latest, was in hopes things were getting better. Prayers for all, hugs, love and hope that tomorrow is better. Such a sweet child.
Sending so very much love and prayers! This comment is so inadequate but I want you to know you are being held in people's hearts, Levi, and your whole family.
Oh Lord Jesus, Creator of all things including precious Levi.. we lift him before you as Jehovah Rapha, and humbly ask your healing hand to restore this amazing boy!
Prayers for strength and healing ❤️
Prayers!!! 🙏🙏🙏
Such a brave boy and nothing but our prayers will continue ❤️🙏 Carol Kirkpatrick