September 19, 2012

This week is full of appoinments to go to.  It started off with a PET scan at Jewish hospital yesterday at 4:45.  We don't know the results from that yet, but we will know on Friday.  This morning, Anne had an Endoscopy in Eastgate to see whether the cancer could be gastro-intestinal.  She did great during the procedure, however, the doctor did not find any tumors in her upper GI tract at all.  He has said that because of this, he believes that the primary cancer is from the lung.  He also stated that if the oncologist wants, he can do a deeper endoscopy to explore more, but he (the GI) doesn't see the need.  So now we are left with the same questions we had after the call from the oncologist on Monday.  We still aren't sure where ther primary cancer is coming from, and we don't know how advanced it is.  This is very frustrating.  I know I can speak for everyone in saying that we are all frustrated that we still don't have a straight answer.  Even though it has been two weeks, we feel like we should have a straight answer by now.

 Anne has still been having some pretty bad back pain ever since her surgery and the pain medicine just doesn't seem to take any of the pain away.  She has gotten to the point that she cannot carry her own weight on her back except for a short amount of time.  I know it may sound weird that she can't support her weight, but it's just that she needs a lot of back support when she is sitting and standing.  The back pain is frustrating as well because we were all under the assumption that it would get better after the surgery, and that hasn't seemed to be the case.  We are all trying to stay as positive as possible for ourselfs and especially for Anne.  It has been difficult, but we just can't give up.  Thank you everyone for all of your love and support, it truly does brighten Anne's day.