Join the collective strength and generosity of our community to help in any way you can. As their situation evolves, we will post needs here. Please check back periodically.
From Matt and Katie: We believe with all our hearts in the power of prayer and in the value of reaching out to God for His grace, mercy, and goodness to see us through this journey of heartbreak and anguish we find ourselves the midst of. Please pray for sweet times together for our family, with our extended family, and in our friendships. Pray for incredible days for Ben because he is, after all, an 8 year-old boy who still wants to run and jump and play. Pray for his comfort and peace for he too is on a path that is unimaginable and taking everything from his beautiful life. Pray for moments, pray for Ben's quality of life, pray for his life to be extended, pray for a miracle. We covet any and all of your prayers, every minute of every day.
Encouragement & Stories:
Let’s create a virtual scrapbook! Have pictures? Post them. What do you love about Ben? Let’s hear it! Words of encouragement? Matt & Katie would love to hear from everyone. Use the Guest Post.
Help With Food:
We’d like to make the day-to-day easier on the family by helping with the daily tasks so Matt and Katie can spend as much time as they can with Ben and Luke. Provide a gift card to Brewers Cabinet, Eclipse Pizza, Bangkok Cuisine, Bab, Sup, Greatful Gardens, Laughing Planet or Jus - that is also very helpful!
Dietary restrictions are limiting broad involvement in meal delivery.
As the duration of this journey is unknown, the medical and related expenses will likely be significant. We would like to raise enough funds to cover their living expenses for this calendar year. Certainly all of our situations are different, so please know that every little bit helps. Thank you in advance for your generosity! Click here to donate!
Initial discussions of a fundraiser are in the works. We’ll keep everyone updated as it starts to take shape.
Matt and Katie want to be completely transparent in communicating that any money remaining will be donated to an organization (yet to be determined) working to find viable treatments for rare genetic diseases like X-Linked ALD.
Stay in Touch:
Please sign up for email notifications to keep up-to-date on the journey. Send encouraging cards and letters to 2161 Westfield
Reno, NV 89509.