Hi from Ben's Mom and Dad and Brother
Everyone's overwhelming love, prayers, generosity, support, and hopefulness, is so helping ease the pain of this unimaginable tragedy. We are grateful. Ben has had really good days the last 2 weeks considering the daily challenges he faces. Although his eyesight is almost gone and he is having trouble with his speech, he is keeping great spirits and his resolve is strong. He likes to start his mornings bright and early jumping on the trampoline and climbing the fireman pole up to the fort. (He still has the tone to do this and he likes to dominate the strength challenges.) He also likes to run in the street and ride his scooter before the morning traffic is on the roads...even though he can't really see. All this before 7:30am. Dad doesn't sleep as much as he used to.
On the way to school he likes to stop at Jus and get an Acai bowl. His school at Mountain View Montessori (MVM) is the highlight of his day(from 10:30 to 12:15). MVM has been amazing, keeping Ben in the flow. He meets with Michele (and gets to bring Spike) who hangs with him and works with him, then he gets to have lunch with a couple of his classmates in a quiet setting (which is necessary due to his condition, because loud busy areas are difficult to process). He is there for about 1.5 hours and every time we pick him up he is so happy! Thank you everyone at MVM! After school he likes to get on the tandem and go for a bike ride. He told us the other day that he didn't want to let a season go by without skiing the chutes....we will figure out a way to get him up there!
On the weekends, he loves to hang with his older buddies who can tell stories, listen to Ben's stories, and play around the house with another set of eyes. Some of his greatest smiles and most heartfelt laughs are during these times...so thankful for everyone's time. Ben loves it, and it gives us a chance to catch up a bit.
With LOVE
Ben's Mom, Dad and Brother
Comments (23)
I think and pray for Ben always. Love you all. Susan
Sending you all prayers, strength and love! Anything you need I here. Ms. Kristy would like be to see the boys!
I just don’t know what to say. Reading this makes me happy even though I am sad. I love you, Katie, and your family. If love could heal Ben would be cured. Thank you for sharing this update.
The photo on the trampoline is amazing! Thank you for sharing. 💗 We think about your family and Ben's sweet smile every day.
So happy to hear he is out enjoying the warm weather and able to do things he enjoys. His enthusiasm and love of life is more than inspiring. Sending tons love to you all....
Thank you for the update. Ben strength is incredible! Thinking and praying about you all daily.
The resiliency in kids is amazing. I love Ben’s spirit and drive. Thank you so much for sharing. Miss you and love to your whole family. Praying for you all daily.
Praying for Ben and your entire family with all my might. Love you all!
Hello Katie and Matt, I just seen this for the first time. My heart breaks for your family and little Ben. I love your family. I have a special place in my heart for Ben since the day I met him in Sunday School. I believe strongly in the power of prayer, as I know you do as well. I know in my heart that God is with you and hears and answers our prayers. I will make a conscious effort to pray everyday for your family and Little Bens comfort and healing. Love you all, Mindy
Such a wonderful update into your daily lives, helps me picture it. Love reading your friends comments, you are loved and prayed over and I of course am doing the same. Love, Donna Marie
I enjoyed your update. You are so positive and active. All my love and prayers coming your way. I keep checking on your mom and dad, Katie, and think about you and your wonderful family everyday. Love you, Patti P.
Thank you so much for this beautiful update! Sending lots of love to you all!
This is Paulletta Lovett. Ben, your grandmother (Andi) is a wonderful friend of mine from back in nursing school. We lived together in an apartment before she married your grandpa. I got to be in their wedding. I have been watching you grow through Facebook. I am praying for all that you and your family needs as you march through this hard thing. When I see my 8 year old grandson, I remember you in prayer. God loves you! And your family so much!
Thank you for sharing this update! It’s great to hear that he’s jumping on the tramp and going to school. You are doing a great job being there for him and giving him the things he loves. I know it’s so hard, but your positivity is wonderful and so good for him.
Would love to see him handle the Chutes like a BOSS! Thank you for the update and news that he's finding happiness in the many spots it can hide. Love from the Peedoks.
Oh dear Matt, Katie, Luke and littke Ben, Thank you for somehow finding the time to write this and let us know how things are going. Our hearts break for all of you. You defined it well: an unimaginable tragedy. This world is so affected by evil, yet we know Jesus cares and hears and is with you every waking and sleeping moment. We pray often for you. I am so grateful God directed me to be there with all of you last Easter. I loved and so enjoyed each of your handsome, fun, delightful little boys. Jon and I will keep praying. The men’s group at our church are praying every Sat morning for you. We send our love to all. Polly and Jon
Wow Ben, you are one super dude! Thanks to your Parents and Luke for keeping us all in the loop regarding what your days have been full of. What a remarkable person you are and we all keep you in our thoughts and prayers every day. Much love, and pets to Spike - he sounds like a perfect addition to your family. Big hugs from the Clan Rabinowitz.
As I read this entry, I can hear the laughter and joy of all the play and adventures. Big hugs, Cathy
Thank you so much for opening up and sharing your world with us. I pray you will find comfort and feel God’s love surround you through all of your friends and family. And in the process you will deeply touch many others’ lives. Our family loves your family and we hold you close! Love, The Makers
Keeping you all in our prayers. 💕
sending all my love and prayers...the videos were awesome.
Dear Katie and Matt....we are keeping all of you in our hearts and prayers. Ben is surrounded by so much love and is so full of strenghth and adventure! You have an incredible family. Joannie and Mike Stosic
I am sending Loveland prayers. My granddaughters: Danika, Sierra and Michaela remember you at night in their prayers and whenever they say grace over their meals. What a strong and courageous boy you are Ben! Your family is strong and loving too! May Jesus lift you all up and carry you. With love, Mary Beth Phillips