March 14, 2014: We're still here.
There's really not much to report today, except that we know we will have at least one more report from here tomorrow. Here's why...
Over the course of ten and a half hours last night, Edward received his first intravenous immunoglobulin (IVIg) infusion. As it was concluding this morning, he had what was most likely a reaction to the IVIg--a significant increase in his heart rate and respirations, and a slight and occasional dip in his oxygen saturation. He was put on a bit of oxygen and given some Tylenol. He caused a lot of bustle and worry, but was completely back to normal and off the oxygen within two hours and has not shown signs of distress all day since then.
The hematology/oncology team was convinced it was directly related to the IVIg, and were happy to let us go home today. The surgical team under whose service we remain, however, knowing how many chances they have given Edward to acquire an infection this week thought it best to run blood tests, culture his central line, and keep us here at least overnight for observation.
Thus begins our second consecutive Sabbath in Helen DeVos Children's Hospital. On a positive note, praise God Edward doesn't really need to be here!
Thank you all for your prayers and encouraging messages. Happy Sabbath!
Comments (25)
Thank you for the latest news. I know you would rather be at home and you will be soon. God will continue to give you and your family strength each day. We are continuing to pray for your family.
Happy Sabbath! We are thanking God for taking care of you all this week :) I hope you have a good nights sleep tonight. ...and a lovely Sabbath tomorrow.
Praying you find rest and joy this Sabbath. We praise God with you for the blessings He has granted... Hug Edward for us! You will be home soon.:)
Happy Sabbath from me too!!! Many more are praying for Edward this evening. Tonight I spoke to the Nigerian church here in Berrien Springs, which meets in Seminary Hall. I told members of the group about Edward, and so more prayers are ascending. Our God is still the Master of life and the Healer of every affliction!
Have a blessed Sabbath and get rest for your souls. We continue to pray and, as you say, zoom out to see the "Big Picture" and all the blessings you will continue to receive. Praise God for His wonderful healing, both physical and Spiritual! See you all soon, love Jer & Deb
A-men! Going home is closer than ever!
Thank you, Emilie and Kameron, for keeping us posted about Edward. We hope that he can go home soon. You continue to pray for you all. Have a blessed Sabbath--even in the hospital. May-Ellen & Gaspar
Happy Sabbath, Edward, Henry, Emilie and Kameron! We pray you will be able to enjoy a real Sabbath rest. So happy for you that you will be able to go home soon.
So, sorry you were not able to go home today. I know you were looking forward to being able to spend the Sabbath at home. I am glad that Edward is doing better but I also understand why the Doc's might want to keep him just a little longer. Edward has caused them all a little more excitement than they need. Continue to keep him and the family in prayer. Praying by tomorrow night all will be sleeping in your own beds. Have a blessed day.
I look every day for your updates and am always glad to hear good news. Though this isn't the happiest news, I know you are thrilled that he is doing well and you will be in your own beds soon! Goodness, Edward has to be the most prayed-for baby there is! He and his family are very loved. :)
We were hoping for you to go home! We will pray for a whole day of no problems. Happy Sabbath and may The Lord come near your little one!
Encouraging report! Thank you Lord! Hang in there my friends and have a restful and Happy Sabbath! We continue to pray for little Edward and the whole family.
We are so thankful that he is doing well! What a wonderful blessing! Praise The Lord for an uneventful day. :-) May the Lors bless you with a peaceful and restful Sabbath. We always keep you all in our prayers.
Praise God! We are glad to hear the news. Praying for your family.
Praise the Lord! Thanks for the good news, Happy Sabbath to you all, and have a safe trip home..See you all soon..
Praising God that you can go home very soon! Happy Sabbath! Try to get some rest... Hugs& Prayers!
Sweet Emily, Praying that this Happy Sabbath day will be filled with blessings for all of you. I have prayed this morning that all reports will come back with positive results and you and little Edward will finally be released to go home. I applaud the surgeons for being cautious, though I know how much you and Edward want to be in your own familiar surroundings. Lord Jesus, this morning I am claiming Your promises in Jer. 33:6 and Jer 33:3 and Psalms 50:15 for Edward, Your precious child who has been so ill. Only You know what is best for him and I place him into Your Hands, as always, trusting You to bring this illness to complete cure as You did in the days when You walked the streets of Jeruselem and Nazareth. Bring happiness and contentment to this child and Glorify Your Name as You continue to work miracles in the life of this precious family. I praise Your Name and give You all Honor and Glory and thank You for the Love You alone can give. I thank You for being here for Kameron and Emily and leading and guiding the physicians and nurses as they tended to the needs of Edward. Jesus, You are the Light of the World and I am humbled to be Your servant. I pray that You continue to use Kameron and Emily in a mighty way to finish this work and I pray that Henry and Edward will be used by You as well. Thank You again for all You have done. In Your Holy Name I pray, and I thank You for hearing and answering my prayer this morning. Happy Sabbath Jesus. Amen.
Good morning, Prayer is the wireless connection to the throne of God. We are praying for Baby Edward and family and we are hoping that all of you will be home together soon. Happiness to all. J Arthur And Velma
Happy Sabbath! We love you!
Praying for discharge today!! Glad he's doin good!
So thrilled to read this!
So glad everything looks better. Hope you can go home soon. Praying.
Blessed Sabbath to you! Edward is being blessed by his improvement and it won't be long before you will all be home together Waiting is hard, but we have the Lord. May His blessings and comfort be with you.
PTL! WE continue to pray for baby Edward and the entire family. May you feels his loving strengthening and comforting arms around you as you continue in this journey! Your family in Christ, Dinzeys
We are praying and God knows what is happening. We know we can trust Him.