I love reading this and learning something new with each post and I love the photos, I feel myself welling up with the comments of support and love for your beautiful little girl.
My daughter has nothing like Emma's condition, but relate to unanswered questions, the feelings of was I to blame, was it something I did, what could have been different, what will life be like for now and her in the future. we are nearly 9 years on and getting ready for the next hurdle.
If I can share anything with you and your family, is to take each step one step at a time, we try not to think to far into the future at any one time and deal with each little step at a time, it truly has made claiming that mountain a whole lot easier. X x x x