Goodness, time has flown by. Since my last post, we have welcomed Meredith to our family, a beautiful, bouncing 8 lbs 10 oz bundle of gorgeousness. I was taken to the hospital with hypertension while Emmy was hospitalized with her third admission with ketoacidosis and hypoglycemia. So, life has been crazy! I'm making the most of the rest of my maternity leave, and will update with all of Emmy's adventures over the next few days! [...]
Emma Morgan - Journal
Read Entries & Updates
We have been incredibly fortunate to find ourselves being taken care of by some incredible physicians. When we switched insurance providers I had concerns that we would lose a lot of the understanding that our family practice physician had. Thankfully we were able to remain patients of a few of our specialty doctors, including our amazing geneticist. and some of the new doctors we have met have been fantastic. Our pediatrician is really phenomenal and listens intently to our concerns, fears, and questions, and steers us well while allowing to maintain some control with our parental intuition.[...]
Phew, what a week it has been.
Daniel’s MRI went smoothly, the only tears that were shed were Daniel’s (when they put bandages on his hands and we didn’t let him pull them off), and mine (when the medicine took effect on my little boy and he fell asleep).[...]
We took Emma off the medication. It was interrupting her sleep, she woke up for a couple of hours in the middle of the night for five nights in a row. She was exhibiting even more noticeable tremors, specifically when tired and when startled. [...]
Welcome to the Emma Morgan support family! This site is for family and friends, old and new, to organize our efforts to support this extraordinary person. This page will serve as your home base for rallying the troops, receiving updates to support Emma Morgan. Here's the plan:
Your First Step: Please take 30 seconds to click on the "Follow" button on the top right of this page. This will allow you to receive updates, read journal entries, make donations, share Emma Morgan’s story on social media, and help the family with week-to-week calendaring needs. Though not mandatory to follow Emma Morgan’s page, we encourage you to easily create an account with your name and email in order to be able to post photos, leave comments and sign up as a helping hand on the Calendar page. Feel free to upload a photo of yourself to your profile so we can get to know and recognize others on Emma Morgan’s support team. After clicking “Follow” above, read on to learn more about what you can do to help.
Journal: This tab is where you can read the latest entries posted for Emma Morgan and our support team. You may see additional authors writing updates here to help alleviate pressure for Emma Morgan and expedite information sharing. Each post is followed by a photo and name of the author of the entry. You can reply with supportive comments to any journal entry, or click on the name of its author to send a private message.
Posts: This is where you can leave an encouraging message for Emma Morgan and family, and to read thoughts left by others! If you have something pressing you'd like suggest that everyone sees (e.g. a fundraiser or upcoming event you're spearheading), please don't hesitate to contact us via private message so we can consider sharing it more widely in the Journal sections. There will undoubtedly be many coordinated efforts and events ahead, and we want to make certain they’re organized and publicized through this site to help drive the greatest possible impact.
Calendar: Please see this important section to learn what the family needs NOW. This will be an especially helpful section for locals in close proximity to Emma Morgan. This is an up-to-date calendar which will list the family's immediate needs such as child-care, rides, and meals to help most in the short term. If you see a need posted and can fill it, please sign up through the calendar page directly (i.e. not through private communication) to let us and others know that you've committed to that need. Please check back often to help out with the most recently posted needs!
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Don’t Forget! If you haven’t done so already, please click “Follow” on the top right. It’s your very next step to showing your support!